New cure for depression ........

[Raglet]

chocolate and an extra antidepressant pill.

Well, it seems to be doing the trick for me - I have had the most dismally depressed day, just couldn't haul myself out of bed which is very rare for me, I don't do the bed all day thing unless I am really sick, or depressed.

so, i popped an extra anti-d pill - not that i would recommend people doing this wholesale everytime they get depressed, but lately when I go to the gym I have been forgetting to take my pills (have breakfast at work those days, so my routine is all out the window) - then by the time i remember it is 'too late' to take my anti-d so i leave it out, take everything else, otherwise I will be up all night and never get any sleep. so i think my levels have dropped into the subtherapuetic range, hence the top up.

but just goes to show that moaning pays, as my daughter's dx was 'you need some chocolate' and she produced some imediately from the depth of her wardrobe.

oh well. i think (know) I am feeling very down about this huge balance loss - I think I give myself about a year before I can't walk at all, which sucks. I do hope i am wrong about that, but if i am going back into my rapid deterioration phase then that is it. oh well. i will go and see my gp tomorrow and talk with him, he is my plotting partner. My rheumie is fabulous, but totally tied up by our system which won't fund more rituxan until i am really ill again, so I am figuring that my swallowing has to get worse again etc etc to qualify again.

anyway, he will likely fax her, i can email but honestly i just don't feel like it, sometimes i just get a bit lethargic when things really bite.

hope your day is going better than mind

cheers

raglet

[flutterbye]

((((Raglet))))

I think it would be surprising if you weren't feeling depressed given the circumstances.

I think that recognising it is a good thing, I never see it coming, and am sure it is easier to get on top of earlier rather than later.

I can't see a problem with tinkering with the medication, just keep an eye on how you are doing, or listen to what others tell you about how you are, sometimes other people can see more clearly I think when the dreaded D kicks in.

I do like your daughter diagnosis and prescription!

I am more sorry than I can adequately express about the rituxan funding situation, it seems utter madness that you have to become really ill and deteriorating before it will be available.

I do hope for better days ahead for you. xxx

[lazylegs]

Hi Raglet,

This whole Rituxan thing is crazy no matter what health care system you are in. The health care professionals have their hands tied. I know it is frustrating for them too. I hope they can pull some strings and get you the Rituxan before things get any worse.

Take care,
Lazylegs

[mamascan]

Dear Raglet,

My heart is hurting for you, and you are in my thoughts often. I think we've all been in the "oops, missed another dose thing", It makes it so hard. Not only can missing those precious dose of anti-d get to you, but "knowing what may lie ahead" also leads to the deep dark place. I know you as a brilliant and energetic woman with so much compassion for those of us who need you, and your sense of humour as sent me into many a ROFLMBO!
Due to the nature of the beast we fight, is it any wonder we have languor? Try to remember not to miss to many of those anti-d's, and note to yourself those occasions when an extra doses are done, so you can remember if it is cyclic.

Warm thoughts and more Chocolate,

Michelle

[Pollyanna]

You know what, you should write an autobiography of your struggle with lupus, because it would be SO good. Think of the horrors you've endured, but with such honesty and generousness of spirit!

You've done more than most "normals" do in their entire life (skydiving comes to mind!!) but more than anything...you have been a wonderful source of inspiration for all us poor souls on this message board.

Whatever you do, just know that you are loved and fully supported by those of us here who do love you and your wonderful spirit. So sorry to hear you down, but I most certainly understand it.

Loving, gentle hugs, Pollyanna :love: