The minds willing the body is....

[Maryrose]

I thought I would share the joys of having lupus and using the underground.

I'm going about my business using the london underground to get to my next destination. I arrive at a station whereby lifts are needed to get to the exit. I am feeling great for which I haven't done for along time, then like a fool I think that I am capable of doing anything. I decide to use the stairs instead of waiting for the lift because it was the rush hour and extremely busy. The first few steps are OK, then has I am going up the legs start to wobble, the breathing gets more and more difficult, then it is time to take a breather. By the time I reach the top I have stopped 5/6 times to get my breath back and to rest the legs, why oh why don't I listern to my body instead of my head. Now after that experience from last Friday, I have caused myself untold pain.

I think I am still capable of doing things, like I use to before this illness took hold, now has the years go by the body becomes less and less able to do what I want.

Oh for the days before lupus.

[LolaLola]

I know what you mean. I don't like lifts and hate the fact that SLE forces me to use them. People on the Underground and not the most patient when you need a breather are they? Luckily I can get from Waterloo to St. Thomas's without trouble and for any other London destination I just take a taxi as I am not in London often. (I do love it there,it is just quite a distance)
x Lola

[Becks]

I know just what you mean!!!

I commute to work everyday using the tube! Thankfully the stations I go to don't have that many steps which is great news for me! But at the end of the day when I get to Wimbledon I literally have to pull myself up the steps and over to the overground!

Just went for a 10 minute walk around the park (I'm fortunate to work next to Kensington gardens) in the shade and I'm completely exhausted!

It's so frustrating not being able to do anything simple! :mad:

[birdie]

I think we all know where you are coming from. On good days I forget and then bang, down I go again. As its been mentioned its soooooooo frustrating, and I feel such an idiot at times of not being able to do simple day to day takss. If someone doens't know me they must wonder what on earth is wrong with that woman?