a message to my enemy

[jb1]

Today I nearly let you win

Today you nearly had me

You are always there

Waiting for the perfect moment to strike

You see me smile, enjoying myself

you let me for a while

And when I have basked in normality

You get tired of waiting

and introduce yourself again

Your welcome varies

But you always manage a wave

a wave of nausea

a wave of fear

a wave of pain

a wave of exhaustion

So polite in your welcome

So intent on making yourself known

I wish you would leave me alone

Oh how I wish you would leave me alone!

[gladm]

What an excellent way of summing up this dreadful illness. Well done.

[AmandaB]

Thanks jb - this sums up my turn of events of late! Was feeling great but my appt last week & various tests show otherwise so I'm being sent to St Thomas' for more proding & poking (sigh) never mind - it was good while it lasted.

Amanda

[Gwen]

JB You sure have summed it all up in this little poem I just loved it.

Gwen

[madisyn]

I just need to vent!!!! I hate this desease!!! I feel so alone, night after night I can't sleep!!! I lay next to my husband while he snores!!!!! He doesn't understand that no matter what I do I can't sleep... At the very least I'm not in pain with the horrible headaches tonight. I got approoved for my SSI first try, oh boy I'm 39 and retired! WOOOOOOOOOOOPEEE!!! Forgive me if I feel horribly sad over that, I have to depend on my husband to support me for the rest of my life. I feel so darn lost and no one understands!!!! **** I'm so depressed ..... My husband doesn't even know I'm alive anymore..... I'm sorry I'm not even making sense right now... I feel so many differant feelings right now, I guess we could say I'm Devistated....I hope someone writes back to me because I need to know that someone feels the same way:sad: :mad:

[LolaLola]

Hi, You sound a lot like me. I gave up work because it became impossible at about 40. I could kill my Husband when he lays snoring! I actually look forward to going to sleep 'cos then I'm not wondering what to do!
I'm not like this all the time,but it is certainly a problem!
Thinking of you,
x Lola

[madisyn]

Thanks for your reply.... I'm so confused and scared about what direction my life is going.... I just feel very lost and I don't think my husband will be around much longer. :(