Got it?!! at last...

[jane1]

Hi...at last...for you who have been watching this space!!:lol:

I have got my second opion..(spelling)..to be referred to St Thomas Lupus Centre London...local authority have said ok...:more:...was seeing a local consultant that was ...hmmm..i wasnt happy with.....Thanks to my gp and a student doctor that did her core subject on SLE on me!!:) finding all the things out that gp hadnt time to do or find...also checking my medical notes way back ect and piecing things together ......jane

[Joandublin]

Thats brilliant news Jane :) Well done to your GP and that student:highfive:

Let us know when the appointment comes up:)

You never know....you could have an interesting future meeting at some stage with 'that' erm, consultant ;)

Best of luck
Joan:rose:

[helloos]

Hi Jane


Horray ! :lol:

Finally an appointment in the right direction.

What a good student doctor !

Good luck on your upcoming appointment.

[Lily]

Great news Jane :) :woohoo:

And kudos to your GP and student doctor, give them my congrats on seeing the big picture!

love
Lily

[chal23]

That's great Jane - please keep us posted on your progress!!!

Love and :luck:,

Chal

[LolaLola]

Well Done,
Remember to take your Symptom List to Tommies with you. Do you have far to travel?
x Lola

[Clare.T]

Jolly Good ! :)

I hope you don't have too long to wait - I think they have to see people within three months.
Maybe worth giving The London Lupus Centre a call to update them since they sometimes refer people on to St Tom's. :)

Clare

[jane1]

many thanks...i do already have a dx from april06.....
Claire is there a difference between the two places then?...lupus clinic or st thoms...i thought they were the one and same?...jane

[Clare.T]

Hi Jane

The London Lupus Centre is the private facility at London Bridge Hospital where you got diagnosed I think.
The Lupus Clinic or Unit, Louise Coote Lupus Unit is the NHS facility at St Thomas'

:)

Clare

[jane1]

ahhh yes.....i have asked to been seen by nhs..David D'cruz and hid merry men or ladies...at the louise coote centre....jane

[ROSST]

good for you - I'm so glad your got your second opinion. Dr C Cruz has a lovely bedside manner and listens to all your concerns. I first saw him in Jan 07 after years of asking my consultant to refer me - it was definately the best thing for me. I am now being treated seriously and being given the proper course of treatment.

Make sure you take notes with you as he'll ask loads of questions and dates etc.

Good luck

Tracey
xx

[jane1]

ok...thats brill!...thanks for your advise......how far back?...jane

[Clare.T]

Way back to the cradle if need be. :lol: You'd normally start from when lupus first hove onto the horizon as a possibility, then work backwards and forwards as need be.

You want a sort of brief intro paragraph to explain why you have come -your recent experiences

You can make a copy and give it to him. My first appointment lasted a good hour.

:)

Cheers
Clare

[jane1]

:lol: :eek: long way back then...lol..would it be also better if i got a copy of my medical records...well the important bits?...do u think....jane

[raggedyann1]

Jane,

I am glad you finally got your referral. The Lupus Clinic at St. Tom's was started by Doctor Graham Hughes who "retired" and started the one at the private hospital. The St. Tom's unit is still held in high esteem in lupus circles. At least that is what I've heard I live in the USA.

Take care,
Karen