feeling bad

[cutiegirl132005]

hey everyone how r yall doing!! me i'm so so. my white blood count decides not to go up high so now i'm guessing i'm acceptable to alot of pain and confusion LOL. um..yea i used to have pains in my fingers but now the pain seems to have settled into my knees and i think the pain moved in. i can only have a couple of hours of fun and then my knees start to attack me!! its not fair i'm only 15 and i can't be a normal TEENAGER!!! i feel guilty because i know other people have it worse than i do:worried: i also feel bad because my grandpa is an invalid and my grandma has to take care of him, me, my sister (16) and her mom and dad including herself. she has a problem with grandpa though. i feel bad because even when she is sick she still has to take care of all of us. me when i'm at my weakest point of pain, i feel like doing nothing and i know that is selfish!!! i hate feeling guilty like that especailly with my sister because she is also a teenager and likes to have fun, i like to have fun but i'm limited to wat i can do and cannot do. its frustrating also. i take my pills but they aren't helping the pain anemore. i'm also having frequent mood swings for no reason. one minute i'm happy and laughing, the next i'm ready to punch someone for no reason!!! y y y y y y y y yy y yy does diseases even have to exist!!!!! On the bright side, today was my spring fest dance performance!! we ROXED THE SHOW lol rox is my new word that i like using. dancing ( ROX MY SOX) lol sorry to be rampaging on and on LOL I luv everyone!!!!!!!

[keebler]

(((((Cutiegirl))))))))

I am sorry you are having pain and your pain pills are not working.:sad: Have you gone back to your rhumey and told him how you are feeling? Maybe you need some medication changes. Are you on any antidepressants? If you are maybe the dosage needs to be adjusted.

I went shopping with a friend today. I had fun but half way threw one of the stores I ran out of gas. I was so exhausted I could hardly walk any further. I too thought why do I have to have this lupus. You are so young and my heart goes out to you.

When I am in so much pain you won't see me doing very much either. I just don't have the engery.

Take care of yourself and let me know how you are doing.

:foryou:

Lyn

[raggedyann1]

Cutiegirl,

I was in my 20's when I was diagnosed I had a hard time not being able to do all the things I enjoyed doing anymore. I can't imagine how much harder it is to live with lupus in your teenage years. It sounds like there are a lot of people in your home. Do you have a place you like to go when you need some quiet time? I know that sometimes I just need some quiet time to recharge myself.

I wear out real easy when I get out of the house to do things. I like quilting and sewing some of my clothes. I love to go to the fabric stores to look for new fabric and embellishments but that usually will wear me out for a day or two. The good part is the quilting and sewing are activities that keep me busy without wearing myself out. Do you have any crafts or other things that you like to do?

What medications besides prednisone and darvocet do you take? Prednisone, which has been mentioned before, can cause mood swings. Even at 20mg when you add in the hormones you have right now could cause the extreme mood swings. Do you see your rheumatologist anytime soon?

Let us know how you get on.

Take care,
Karen

[LolaLola]

Dear Cutie,
My Daughter is 16 and ill,so I do have some idea! Luckily I only got really sick when I hit 30 so I did a lot she won't be able to.

It sounds like you have a pretty busy house. Do you get time on your own? I expect you need it and sometimes even a few quiet minutes can help. Do you have good friends? My Daughter has got decent friends and a lovely boyfriend but for a long time was very lonely as she was too ill for school.

Take Care Sweetheart,
x Lola