also new to site

[grannygrunt57]

hello to everyone, just found the site and would like to say hello. and to sympathize with everyone whether waiting to be tested or newly diagnosed.||| myself. i am recently turned 50 lady who has been going through the usual mill of lots of recurring ailments,already have thyroid problems ,had hysterectomy at 29, growing pains , allergic to septrin,etc. but although i could rattle of a positive to the list of symptoms i only have a mild positive ana, and a negative dna, i dont have any thing wrong with me it appears!!!. was not going through what i called an episode when bloodw were taken by rhummy. think i am losing my mind, how can you be so ill and have nothing wrong with you..nice to read about other peoples experiences, and good wishes to you all

[Joandublin]

Hi Grannygrunt:)

Welcome to the Forum. It sounds like you have been through a lot over the years:hugbetter:

Where are you now with your investigations? It is terrible to feel so ill and not to have answers:worried: If we can help in any way we certainly will.

Take care for now
Looking forward to getting to know you
Joan:rose:

[mumoffive]

Granny Grunt...hugs you have stated my position exactly...my bloods show ana and aps but otherwis I am fine...apart from I can barely walk, my hands are useless and my faigue is indescrbable....standing up to the docs is a bit tough when all i can do is cry!!! I try to be assertie but end up a crumpled mess!!!!

hugs...why is it knowing someone else feels as yuk as you do it makes you feel comforted??????

[grannygrunt57]

many thanks for the hugs, greatly appreciated. as I have titled, "how do you cope?", being a mum of 5, their must be days when all you want to do is call up in a ball.Have they given you any medication yet? I already take df118,s for pain after having 2 operations on my lower spine, so I dont think I will get anything else until a diagnosis is final(heaven alone knows when that will be). Have read on another lupus site that a negative anti DNA does not necesserily mean no lupus, so lets hope a breakthrough for us is around the corner. take care of yourself, granny grunt:hehe:

[raggedyann1]

Granny,

A lupus diagnosis at times is a matter of ruling out anything that can cause the symptoms. Lupus mimics so many different things that it can be difficult to diagnose. Take some time to read over the post on Lupus Criteria and Symptoms it is pinned at the top of the Not Yet Diagnosed Forum.

I do not have the anti-dsdna however I have other positive blood work. My ana is 1:1280 which is extremely significant. It is very rare to get diagnosed with lupus without some positive blood tests. The post I mentioned above will clarify things for you.

Take care,
Karen