Hypermobile toddler?

[Hatty]

Hi there

Does anyone have a child who has benign hypermobility? I have SLE myself and have had life long back problems that may be to do with hypermobility, and my 1 year old daughter has just been diagnosed with hypermobility and is seeing a physio. She's doing great although late with motor stuff but I can't stop worrying about her having the same adolescence as mine, being in pain and being weird because she can't walk properly etc. Does anyone else know anything about this, or whether it is linked to lupus? I can't find any information about really young children with this problem and what their prognosis is?

I would love any suggestions!

xHatty

[Clare.T]

Hi Hatty
I am sorry to hear of your concerns about your toddler. There's a 'sticky' article above on the topic which I hope will be helpful. Clearly it is being taken seriously in your case and not being brushed off as 'party tricks'. There are members here who have hypermobility and some of the children with lupus also have hypermobility. Best to focus on how many do NOT have lupus.

Very best wishes
Clare

[neongirl]

I was dxd as hyperflexive/hypermobility as a child. My parents put me in gymnastics classes and in some ways it allowed me a little extra edge, doing the splits for example, I could easily extend way beyond that. On the other hand, I was horribly awkward and clumsy, which is why my parents originally enrolled me in gymnastics, thinking it would help. Despite the pain I also ran track, played softball, basketball,and did martial arts until I was 16 and developed heart murmur/enlarged heart and couldn't pass the physical. No one thought to test for Lupus until much later. My point being, a hypermobile child can still have a fun, active childhood. My brother was also hypermobile and doesn't have Lupus. My son is hypermobile and he doesn't have Lupus either. I guess you could say I drew the short straw:hehe: It is probably something to keep an eye on, but try not to worry too much, it may turn out to be just a quirk like it is with my brother and son:)

[LolaLola]

My children and I go beyond Hypermobility as we have Ehlers Danlos syndrome. My some is the worst affected. Both children need to use computers as hands and shoulders too unstable to write. My knees are my worst, they point backwards and I have to lock them to bear any weight.
In terms of doing things, neither child could manage sports. My Daughter has the most un coordinated run,but in teen life it has not proved a problem.
A Paediatric Rheumatologist was a great help.
x Lola

[StevieM]

Hi Hatty,

I have 2 daughters both who have been dx'd with hypermobility...however, the oldest (now 13) also has SLE. The main problems that they get are to do with dislocations, which happen all to often, but with physio both are now doing well.


If you want to chat anytime contact me via msn or email, and I will offer any help or support that I am able too. Sorry I can't say much more here as my 13yr old doesn't want me to post about her anymore :)

Stevie

[Jmaca]

The ballet world is full of dancers with hypermobility syndrome. I was diagnosed as hypermobile as a child. My daughter is a ballet dancer, but is not hypermobile. She'd give anything to have that problem (as long as it's not extreme) because she's had to fight for every single bit of flexibility she's got.

In ballet, dancers who are hypermobile are sought out. Teachers recognize that they have stability issues and train them very carefully. They take longer to gain strength, but once they do, they are the dancers who get accepted easily at auditions.

Thought you'd want to hear of one place where being hypermobile is considered an asset!