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someonesfriend
12-09-2007, 03:18 AM
posted this in the under 20 section yesterday, but it really seems to apply to kids as well as teens even though its called "teens and lupus", so thought id re-post here too, hope thats okay to do...

Join the LFA's Next Webchat on: Teens & Lupus

Wednesday, December 12
3:00 p.m. Eastern Daylight Time


Caring for a child with lupus is one of the greatest challenges a family can face. After the diagnosis is made, the first step for every parent is to learn as much as possible about the disease and the special needs of a child with lupus. Parents need to educate the child with lupus and their other children, plus their child's teachers, and family friends.

The next Lupus Live Chat will be on the topic of Teens & Lupus, and the special needs of pediatric lupus patients.


About Our Guest Speaker: Peter Chira, M.D., M.S., is an instructor of pediatric rheumatology at Stanford University School of Medicine at Lucille Packard Children's Hospital. Dr. Chira's research interests focus on improving the transition and educational process for adolescents with rheumatic diseases, including those with systemic lupus, and evaluating the role of information technology in this transition, with a past project looking at the role of an online chat room support group for teens with rheumatic conditions. Currently, Dr. Chira is working on a project looking at designing a personal health record for teens with chronic health problems.


Wednesday, December 12, 2007
3:00 p.m. Eastern
2:00 p.m. Central
1:00 p.m. Mountain
Noon Pacific
11:00 a.m. Alaska
9:00 a.m. Hawaii

Login to Live Chat (bookmark this URL) - http://www.lupus.org/newsite/pages/chat_login.html

Submit a question in advance - http://www.lupus.org/newsite/pages/submit_question.html

Read transcripts from our previous Live Chats - http://www.lupus.org/webmodules/webarticlesnet/templates/new_communityinteractive.aspx?articleid=586&zoneid=98

Upcoming Chats:

January 9, 2008 -- New Year's Resolutions
February 2008 -- Women's Heart Health
March 2008 -- Kidneys & Lupus
April 2008 -- Gastrointestinal Issues & Lupus

StevieM
12-28-2007, 02:06 AM
Hi All,

Dr Chira didn't make the origional chat, but it has been re scheduled for Jan 28th 2008 with details of time to follow.


Stevie :)

someonesfriend
01-24-2008, 01:58 AM
The e-mail I got from them a week or two ago said it was rescheduled for today...I meant to come post the new info but totally forgot heh...sorry.... :sorry: