I was diagnosed with MCTD and Lupus in 2008. I have been symptomatic since 2003. I have very stiff and sore joints, hips, knees, and shoulders. Ialso have extreme tiredness, and my newest symptom is dizziness. The dizziness is intermittant and seems to happen when I lay down. I have been prescribed meclazine and it does not seem to be helping. I am also taking prednisone 40mg daily, plaquenil 400mg daily, methotrexate 10mg weekly, folic acid 1mg daily, neurontin 1800mg daily,elavil 25mg,sertraline 50mg daily. Even with all these meds the doctor does not seem to have found the right combination. I am not able to walk much at all, it is very hard to stand from a sitting position, and climbing stairs is impossible. I have been on these meds for almost two years so I do not believe it is a side effect from these meds. Is dizziness a sign of the beginnings of CNS vasculitis? I also get edema in my lower legs and feet. If anyone has any advise I would be most grateful.
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