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  • question (stomach pain and bloating)

    For the past few days i have had pains in my stomach and back also bloating, i went to see Gp on Friday she put me on mintec. As i am not on any meds at the moment because i do not see rhuemy till end of August i asked her if it is linked to lupus she say's she does not think so.
    Does anyone else get this problem with their stomach or is it just because of going through the menopause.
    Does plaquenil help the bloating when you have been on it for a while or is it only for the joint pain,i am just curious.
    Thanks for all the support you have given me in the past.

  • #2
    Hello Sandy,

    I'm sorry to hear you've been feeling like that. It is very uncomfortable.

    I'm not sure if I would say it is a lupus thing but I think one could say it can tie in.

    I get bloating and my whole digestive system slows considerably when I'm not feeling good. As my flares tend to go on for ages, that's not very nice. There seems to be an element of gastroparesis linked to my problems as I have week muscles everywhere (so why not weak stomach muscles). For my part, diet has helped considerably but it's quite an experimet to find what does help.

    There are also a lot of people who have lupus that get Irritable Bowel Syndrome and I think (though I may be wrong) that it can even be an element in diagnosis. I believe that's what mintec is prescribed for.

    I don't think the plaquenil will help at all. You should maybe see when this is happening. Is it all the time? Does it tie in with flares? Does your digestive system seem to have slowed?

    I think that most people find that the most effective help is diet. It took me a long time to really find what helped and also a long time to change habits and do something constructive about it.

    bye for now,
    Katharine

    Comment


    • #3
      Hi katherine

      Thanks for replying, the doctor did say it could be irritable bowel syndrome but she also sent a urine sample as she is concerned about the past infections i have had blood in urine etc.
      I do not know if i am in aflare at the moment but my wrists are very sore, you know what it is today wrists,yesterday elbows, the other day it was legs.
      Sorry to moan but i am a bit sick of being in pain.
      Anyway thanks for responding it is nice that people can cybertalk,as most of my freinds have not shown their faces since i was diagnosed.
      Thanks once again hugs from sandy

      Comment


      • #4
        Hi,

        If it is lupus....doc will probably but you on steriods first the intoduce you to plaq. There are quite a few peole on here with IBS. Lupus is not easy to DX. We all have so many conflicting symtoms

        Ask doc to if they could run a lupus panel (blood work) to get the ball rolling. Read info on this site and on web. Do not DX your self. Lupus is hard to DX because it is the great imitator. You can rant here. We have all been there and understand.
        You said that your friends have not shown there faces since you were DX'd. What are you referring to.

        When people get sick you definitly find out wh your friends are. Try to be positive...Yes I know it is hard.

        Join us in chat

        Elaine

        Comment


        • #5
          I too am a lupus individual with IBS (or so they say until the abdominal CT comes back). I have severe abdominal pains whenever I eat. I end up going to the restroom until my body expels what I had just eaten. I do not absorb nutrients because I cannot hold it long enough. I hope this is not the same you have because I hate it.
          Yes, abdominal pains are related to Lupus and so is stress. Don't let anyone tell you different. You may have a mixture of both which makes your stomach work extra hard. I hope that you and I find out how to handle this.

          Comment


          • #6
            elaine

            Originally posted by dudley View Post
            Hi,

            If it is lupus....doc will probably but you on steriods first the intoduce you to plaq. There are quite a few peole on here with IBS. Lupus is not easy to DX. We all have so many conflicting symtoms

            Ask doc to if they could run a lupus panel (blood work) to get the ball rolling. Read info on this site and on web. Do not DX your self. Lupus is hard to DX because it is the great imitator. You can rant here. We have all been there and understand.
            You said that your friends have not shown there faces since you were DX'd. What are you referring to.

            When people get sick you definitly find out wh your friends are. Try to be positive...Yes I know it is hard.

            Join us in chat

            Elaine
            thanks for the advice elaine, as i say my freinds of 25 years make excuses now about coming they keep asking is it contagious. also is it like aids i tell them no, we do not even get invited to their house anymore the only time we have contact now is on the phone.
            i am not bothered anymore now about them,as i am learning to make new friends at local club.

            Comment


            • #7
              Originally posted by isavelives View Post
              I too am a lupus individual with IBS (or so they say until the abdominal CT comes back). I have severe abdominal pains whenever I eat. I end up going to the restroom until my body expels what I had just eaten. I do not absorb nutrients because I cannot hold it long enough. I hope this is not the same you have because I hate it.
              Yes, abdominal pains are related to Lupus and so is stress. Don't let anyone tell you different. You may have a mixture of both which makes your stomach work extra hard. I hope that you and I find out how to handle this.
              thank you for replying to me, i think this is with lupus as did not have any bother
              before dx.
              it is not a pleasant thing to deal with, my doctors have twice given me the same tablets which work but very slowly, i go to see rhmy at the end of this month, my doc says not to mention it but i might.
              thanks again hugs sandy

              Comment


              • #8
                isavelives

                Originally posted by isavelives View Post
                I too am a lupus individual with IBS (or so they say until the abdominal CT comes back). I have severe abdominal pains whenever I eat. I end up going to the restroom until my body expels what I had just eaten. I do not absorb nutrients because I cannot hold it long enough. I hope this is not the same you have because I hate it.
                Yes, abdominal pains are related to Lupus and so is stress. Don't let anyone tell you different. You may have a mixture of both which makes your stomach work extra hard. I hope that you and I find out how to handle this.
                hi and thank you for replying i feel sorry for you being in pain as i know what it is like.i am thinking of mentioning it to rhuemy when i go at end of August.
                take care and thanks again hugs sandy

                Comment


                • #9
                  Sandy,

                  Sorry to hear that your suffering tummy bloating etc.!

                  I am very suprised and shocked that your GP said not to mention it - please do mention it! When a GP uses phrases like "dosent think so" , that is just confirmation that they are not experts with chronic illnesses.

                  It may not be important, but that it for the Rhuemi to decide not your GP. If not Lupus related then so be it, but referrals can also be done by them to other specialist like a Gastrologist if need be for further investigations.

                  Take care!

                  Lesley

                  Comment


                  • #10
                    lesley

                    Originally posted by greenhaggis View Post
                    Sandy,

                    Sorry to hear that your suffering tummy bloating etc.!

                    I am very suprised and shocked that your GP said not to mention it - please do mention it! When a GP uses phrases like "dosent think so" , that is just confirmation that they are not experts with chronic illnesses.

                    It may not be important, but that it for the Rhuemi to decide not your GP. If not Lupus related then so be it, but referrals can also be done by them to other specialist like a Gastrologist if need be for further investigations.

                    Take care!

                    Lesley
                    thank you for replying i am taking your advice i am going to mention it to the rhuemy when i go at the end of this month even if it has nothing to do with lupus.
                    thanks for all replies hugs sandy

                    Comment


                    • #11
                      Sandy,

                      Is the GP that said not to mention it to Rhuemie about the stomach issues the same one that told you not to use the internet to find out about Lupus!

                      I do hope you have a good appointment with your specialist at the end of this month - remember to tell them every symptom and pain since you last visited and things that are restricting your life more and more!

                      Also ask their advice of how you deal with problems as you dont know what could be Lupus or not (and nor does your GP) and if they have a contact no. that you can phone for queries and emergencies.

                      Hugs Lesley
                      Last edited by greenhaggis; 08-17-2008, 09:18 AM.

                      Comment


                      • #12
                        Hi Sandy

                        "For the past few days i have had pains in my stomach and back also bloating"

                        Sandy, I am eating a lot of gluten for a upcoming biopsy for Celiac, September 4th. The bloating in my stomach is terrible. I look nearly ten moths pregnant (miracle of science). I have much pain. My hands, arms and face is also swollen. I had a severe kidney/bladder infection, and vertigo (both haven treated and have calmed.) I also get these pimples that are very sore, and they also turn into sores, because scratch them when they get itchy.

                        I have IBS, leaky gut, and much constipation with diarrhea, when it deems fit to show it's ugly head. I also have Sjogrens. This bloating all started when I went back on gluten.

                        My Lupus symptoms are very active (have not been diagnosed yet with Lupus.)

                        Hugs

                        Gerri

                        Comment


                        • #13
                          As Gerri has suggested, bloating is a very common symptom of coeliac disease. Coeliac is another autoimmune disorder, and is extremely underdiagnosed. The probably incidence (from population studies) is now thought to be about 1 in 100 people, but less than 1 in eight of these is actuallyt diagnosed. I'd strongly suggest pushing your GP to do the blood screening tests for coeliac (antiendomysial antibodies is usually the most accurate one). Just make sure, like Gerri, you stay on the full gluten containing diet until you have had the blood tests done, and then if they are positive still keep on eating gluten until you have had an endoscopy and biopsy to prove it conclusively. If it is coeliac, then the good news is that it doesn't take drugs to cure it, just a gluten free diet. Also, once on the gluten free diet you will notice positive changes very quickly (within weeks). A GF diet seems really difficult at first, but once you get used to it isnt hard at all, particularly if you cook your food from scratch rather than relying on pre-prepared and packaged meals.

                          Comment


                          • #14
                            hi Lesley

                            Originally posted by greenhaggis View Post
                            Sandy,

                            Is the GP that said not to mention it to Rhuemie about the stomach issues the same one that told you not to use the internet to find out about Lupus!

                            I do hope you have a good appointment with your specialist at the end of this month - remember to tell them every symptom and pain since you last visited and things that are restricting your life more and more!

                            Also ask their advice of how you deal with problems as you dont know what could be Lupus or not (and nor does your GP) and if they have a contact no. that you can phone for queries and emergencies.

                            Hugs Lesley
                            HI
                            yes this was the same doctor he said that this is probably my age and stress
                            that is causing all the uncomfortable problems i am having.
                            he wants me to take the full course of mintec and only then will he do any investigations if i am still having trouble.
                            as he says my sle is only mild, as if it is a matter of fact.
                            anyway thanks for the support and i will mention it to rhuemy.
                            hugs sandy

                            Comment


                            • #15
                              Hi Gerry

                              Originally posted by Gerri54 View Post
                              Hi Sandy

                              "For the past few days i have had pains in my stomach and back also bloating"

                              Sandy, I am eating a lot of gluten for a upcoming biopsy for Celiac, September 4th. The bloating in my stomach is terrible. I look nearly ten moths pregnant (miracle of science). I have much pain. My hands, arms and face is also swollen. I had a severe kidney/bladder infection, and vertigo (both haven treated and have calmed.) I also get these pimples that are very sore, and they also turn into sores, because scratch them when they get itchy.

                              I have IBS, leaky gut, and much constipation with diarrhea, when it deems fit to show it's ugly head. I also have Sjogrens. This bloating all started when I went back on gluten.

                              My Lupus symptoms are very active (have not been diagnosed yet with Lupus.)

                              Hugs

                              Gerri
                              Hi Gerry
                              thanks for your reply unfortunatly my doctors do not like doing any tests untill you have been for a few times i had 3 water infections last year and they still did nothing, eventually i ended up in hospital as an out patientant the young doctor gave me a letter and the doctor said i had to have 5 water infections before they paid for tests.
                              i am reluctant to ask about diets as i am not a strong person to even contemplate talking to them about much.
                              Like you i look as though i am ready to drop a baby, people have asked am i pregnant.
                              i will go to library and try to find a diet.
                              Well thanks for responding
                              hugs sandy

                              Comment

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