I'm turning here because honestly... I'm beginning to feel hopeless... I'm giving ya'll the full story so hopefully someone can help me make sense of this... If anyone has experienced this symptom, let me know if they ever fixed it or if they believe it was caused from Lupus.
My primary dr referred me to a rheumatologist when I started noticing that I was losing my grip in both my hands. Rheumatologist at the first visit mentioned 4 things in particular, one of which was lupus. He had me grip a blood pressure cuff that was at 20. I was able to squeeze it up to 40 w/ my right hand and 45 w/ my left... (I'm right handed) The Dr. then squeezed it up to 145 as a test so obviously something is wrong. He asked lots of questions and narrowed down his search to 2 things, MS or Lupus... He scheduled LOTS of tests. Blood tests all came back normal except the test showed inflamation... I don't know much more than that as they don't exactly elaborate. X-rays were great. Electric shock nerve tests and muscle tests showed nothing out of the ordinary. MRI was fine so no to MS. Dr was "surprised" when my ANA came back negative. "I Was so sure you were going to be positive on that test from your other symptoms" And that pretty much explains the last 4 months. Lately it has gotten significantly worse. I decorate cakes as a lil side job and the last cake I was working on I had to use both hands to squeeze the decorator bag and my fingers were turning white and I had to change my design for the cake to accommodate the latest lost of strength
Today was my appt where I assumed that I would get an answer to why at 25, I can't even open a box of cereal. My Dr looked over my test results today. ALL of them (this would be the third time for some) He looked over my hands and kept talking about how there's no evidence of bone damage (yes we covered that 2 visits ago)... He then started talking about how he believes that this is something in the early stages, and he's almost sure its Lupus, but we are going to give it 3 months. "I'm going to prescribe you some naproxin for the pain and we'll do some blood tests in 3 months"......... This was the point where I began crying like a baby... I can no longer do the things I enjoy. I can barely wash dishes. I'm a stay at home mom w/ 2 kids under the age of 3 and over the past 4 months while waiting for the Dr, I have gone from a little grip to the point where I can barely put my baby in her crib cause I lose grip of her at last minute and she lands roughly on the mattress (from about 2 in off of it so it doesn't hurt her... just makes laying down a sleeping baby that much more complex)... Something is wrong... and if this is the early stages of Lupus, or anything else for that matter, what is it gonna be like when I have reached full blown??
Has anyone experienced a loss of grip like this w/ Lupus? I have ALOT of the symptoms and the Dr seems sure it is lupus but he wont treat it. I know diagnosis of lupus can be a long process, but I need answers NOW... If this is lupus, something needs to be done. If I just have Lupus and this is unrelated then lets address that...
I don't know where to go from here. I know I'm going to get a second opinion. with the symptoms I have even the Dr was sure it was lupus and I know it imitates but why wont he try SOME kind of treatment. If I wanted pain meds for my hands I could have just gone to the er 6 months ago when they began feeling achy and not waited around to see a Dr who wont give me any help. I've learned to cope with the pain for the last 6 months... I just need my hands back !!!
any help would greatly be appreciated... Personal experiences are welcome as that's all I really have to go by now... From what I've learned about lupus, its different for everyone and I've found some stories online where people have a problem with their grip but no one really elaborates so I guess its not as much of an inconvenience as this is.