Just wondered what sort of experiences you've had telling people about your lupus. do you tell everyone? Am i just weird by not telling most people?
I was diagnosed aged 13 so most of my close friends from school know about it because I had to have some special treatment at school. However since I went to uni I haven't really told anyone apart from my boyfriend. I'm still friends with people from school so they still know but I dont tell people at work or my uni friends. I've just found it really hard, also because a lot of my friends are also friends with people from different areas of my life I find it hard to tell one group of them and not the other. I finally told my boss the other day and I know she can't really tell the other girls at work but I wonder about telling them myself.
What do other people do?