Hello from my wife and me, our story starts back in 2005 when my wife suffered an accident at work which she hurt her back (lumber spine) since then things have got alot worse,. She has bad motorbility problems with servere leg shaking and is unable to walk without help from me or with a walking stick.
Over the last 7 years since her accident she has been through every dept and seen nearly every Doctor there is, Physio, Xrays, MRIs, pain blocking injections, accupuncture, CBT courses x2, etc etc, from the point of the accident her symtoms where just a sore back in the lumber region since then her symptoms have developed and include leg shaking, servere headaches, extreme sore aching joints in her hands legs and hips, red rash over her chest and face, light sensitivity.
We had seen nearly every Doctor from every dept and when we went back to our GP she suggested seeing a lady called Dr Francis Hall from Addenbrookes in Cambridge so of we went, i must admit we had a very negative opion as we thought that we were just going to be told the same old thing " sorry not much we can do" and "just get more sleep its all in your head". Anyway we where in there for nearly 2 hours and she asked about the accident and family history and went through my wifes medical history, she examined my wife and after some time said that she thinks that she was suffering from SLE and what to expect, what would be done and what medication could be offered. She then went on to say that a few more tests will need to be done including another full blood test, another MRI on my wifes spinal cord, these have now been done and she is going to call us on January 20th 2012 with her findings then we have another face to face meeting with her in April next year.
She did point out when she was going through my wifes medical history that a blood test back in 2006 showed a positive ANA result and another blood test in 2007 showed raised ESR results and she was a little bemused that no one had picked up on these as they showed there was a problem with inflamation. We went to our GP today and she showed us some results of our most recent bloodtest done on 28th nov and it shows very slightly raised ESR but negative ANA.
Dr Hall did seem to think that my wifes problem with her leg shaking and mobility is due to inflamation caused to her spinal cord and had damaged it causing the mobility problems, she has sent us a letter from our appointment with some diagnosis which says that my wife is Hypermobile 9/9 on the Beighton score, has Raynards phenonium, Migranes, and SLE (provisional) we will have to wait till we speak to her to see what the outcome on SLE is.