Lupus is a difficult disease to diagnose & many
patients end up seeing more than one specialist before a diagnosis
You'll often find that you have things you want to
ask the doctor, but when you get there you forget. Make a list
of symptoms that you are having & of any questions you want
to ask the doctor before you go, & take this list with you.
If you don't understand anything the doctor says,
or you want something explained, don't be afraid to ask. If you
really don't want to ask the doctor, seak to the nurse afterwards.
If you have a GP that doesn't understand lupus, try
to educate him/her by giving him/her literature on SLE.
If you find that you aren't getting anywhere with
your GP (or specialist), & feel that it's a constant battle
to get the treatment you are entitled to, change to another doctor.
If the problem is with your GP- is there another doctor in the practice
you can see? You don't have to always see the GP you're registered
with at that practice. If you still have no luck, change to another
surgery. (UK)To do this just go along to the surgery of your choice
& tell the receptionist that you want to transfer there. (You
can find out the name of a sympathetic doctor in your area by speaking
to someone locally who has lupus-find them at a local support group
meeting or get in touch with your local contact.) If you have trouble
finding a doctor who has room on their list, contact your local
Family Health Services Authority, who will have a list of all GPs
in your area who have room on their lists.
If the problem is with your specialist- contact Lupus
UK, who may be able to recommend a lupus specialist in your area.
You may have to travel further afield to find a good lupus specialist
though. Explain to your GP about the problems you are having &
ask if you can transfer to another specialist.