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18 weeks pregnant and Lu[pus acting up..any experience?

Discussion in 'Living with lupus' started by asmo, Jun 7, 2010.

  1. asmo

    asmo Registered

    Hello, I was diagnosed with SLE in 2008, however I am fortunate that it has mainly just been skin and joints affected so far. I accidently fell pregnant and was worried how the lupus would affect everything, but since I seemed in okay health it was deemed safe.

    However...now my special care consultant has notice protein in my urine, and last week they called to say my liver enzyme ALT reading was at 111 when it should be maximum 35. I am going into hospital tomorrow for a liver scan. As well as this we also need to have a cardiac fetal test in 2 weeks and a placenta doppler test.

    The problem is I haven't really had much kidney and liver involvement before, and now I am panicking that the lupus is causing trouble. My GP the other day said that these symptoms suggest pre eclampsia, but its odd for it to be showing before 20 weeks. Surely if it is pre eclampsia this early then what are they likely to do this early? On a stranger note, my BP seems to be okay as far as I know.

    Has anyone else had experience of early possible pre eclampsia, or elevated liver enzymes and what it means? My consultant had always mentioned that an early delivery was possible, but now i'm worried how early is early, and does everyone with lupus have to have all these tests?

    I'm too frightened now to even think about the baby in case something bad is going to happen. Sorry for the long post.
  2. lynnhugs

    lynnhugs Registered

    hi asmo
    welcome to the site sorry i carnt anwser your question im sure someone will come along and do so its so hard not to worry i do hope every thing goes well for you take care
  3. keebler

    keebler Moderator

  4. diamonds

    diamonds Registered

    My first pregnancy was a preeclamptic/HELLP pregnancy and i delivered early. Preeclampsia/HELLP is unusual before 20 weeks, but it can occur. HELLP can occur without blood pressure changes as well. With HELLP thrombocytopenia, abnormal liver function, and hemolysis also shows in blood results.

    However it could be a lupus flare. Lupus flares are difficult to distinguish from preeclampsia. I had protenuria, HELLP and high BP but no oedema. I had high urate levels which are suggestive of preeclampsia so i was delivered, however if it is a lupus flare they can try steroids to improve the flare. At the time i was unaware i had an underlying condition like lupus. I have since found out lupus pregnancies are followed lots more closely than the average pregnancy. My Preeclampsia/HELLP was diagnosed at 33.5 weeks and i delivered at 35 weeks. MY rheumy suspects it was possible that it was occuring from 30 weeks.

    Try not to stress. Wait until you get your results and opinions from a high risk ob. Your specialist is the best person who could give you an idea of what to expect in terms of how much further you will be able to get into your pregnancy and what treatment you will need. All the best. Keep us updated :hug:
  5. michelledub

    michelledub Registered

    hi asmo,
    i have no experience of pregnacy myself apart from living through my sister's last 3 with her. i really hope all goes well for you and at the end of all the upset your going through you'll have the most beautyful baby ever born.
    good luck and drive your doctors mad with what ever questions you think of no matter how silly you think they are.

  6. asmo

    asmo Registered

    More problems!

    Argghhhh!! So, my liver levels have gone down slightly, but are still way over what they would like. I had forgotten about that and waited for my 20 week scan so i could see junior again to cheer me up.

    However during the scan the sonographer found that the baby's posterier ventricle is enlarged, she then got a doctor who confirmed this. Its what they call in the borderline area. They offered us an amnio which we refused, and did a TORCH screening. He told us about how this could signify downs in particular (although we missed nuchal scan my triple test result was 1 in 28000). So sent us home and have to go back in two weeks to have the scan again and see if any of the early pregnancy infection tests have come back.

    Such a stressful time. I thought all the stress went away after the 12 week mark, now it just seems to be one thing after another. Seriously hoping that the measurements have gone down by the time we go back, otherwise they may want us to consider the amnio again.

    I'm 22 weeks now, and feeling the baby jig about a fair bit which makes me feel positive. I'm just frightened that all these lupus risks plus now this added worry regarding this abnormality. It seems to be one stress after another, i just want to be able to have a happy and stress free pregnancy! :(
  7. pippa10

    pippa10 Registered

    :aww: Asmo I'm sorry you are going through so much. Pregnancy is a wonderful time but it dose bring its worries with it. Just try and stay positive if you can and live in the moment . The two weeks wont be long going I think it's the waiting is often the worse because we can let our minds work overtime and come up with things that might never happen. Take care of yourself and be kind to yourself right now you need to. Let us know how things are going. :hug: Pip
  8. keebler

    keebler Moderator


    I am sending you soft, gentle, strengthening hugs your way.:hug::hug::hug:

    I am sorry that you are dealing with so much.
    Please let us know how you are doing.
    Love & :grouphug2:
  9. Maia

    Maia Registered

    Best wishes for a more reassuring outcome at your rescan. Only do the amnio if you want to do it - if it would change your decision about how to proceed in some way.

    You definitely deserve some time to just enjoy all the little things of pregnancy that can bring so much joy. Hopefully you're able to do that despite the additional stresses and worries you've been dealing with.

    Please keep us updated and sending many (((hugs))) your way.
  10. diamonds

    diamonds Registered


    I'm sorry to hear that you have added stress at the moment. I hope the scans in two weeks show an improvement and you can avoid an amnio. Sending positive thoughts your way. Good Luck :)
  11. debatat

    debatat Moderator

    Just wanted to wish you well. Sending you positive vibes and gentle hugs x
  12. Katharine

    Katharine Registered

    Gosh I'm sorry to hear you are going through so much :grouphug2:

    I am auntie to a down's child so I know how stressful such a pregnancy can be - they only found out two weeks after he was born but the second pregnancy was very stressful for them, they were afraid it would happen all over again.

    I'd agree with Maia on the amnio - only if you're comfortable with it and only if it would change your long-term decision.

    More hugs and fingers crossed for that second scan :hug:

  13. countrylass

    countrylass Registered

    aww welcome to site
    gentle hugs sorry see what your going threw,hope pray 2nd scan shows much clearer good news for you both.
    take care

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