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doctors not on the same page

Discussion in 'Living with lupus' started by kstarr, Jul 22, 2020.

  1. kstarr

    kstarr New Member

    I am having problems with my Family Doctor and my Rheumatologist and Nephrologist not being on the same page. It seems like my Specialists do not know what my Family Doctor is doing and my Family Doctor doesn't know what my Specialists are doing. I guess I have to get my medical records from each of their visits so the other doctor will know what the other one is doing? Does anyone know of an easier way to solve this problem?
  2. Lori ODonnell

    Lori ODonnell New Member

    I have the same problem. I have my GP at the VA and my Pulmonologist and Rheumatologist "care in the community". They are not linked. Same with my Hematologist. I have labs done at the VA. No one receives the results. I have to sign a release, provide the fax # of the recipients.
    Pain in the butt because they are not system linked.

  3. Jessica1

    Jessica1 Moderator

    Hi kstarr,

    My consultant copies in my doctor when any letters are sent out so he knows what's happening. I'm fortunate because my rheumatologist and dermatologist work in the same hospital so they access the records directly on the computer system.

    Have you asked either one to make contact with the other? It's frustrating enough having an illness without having to do so much work that shouldn't be your responsibility.

    I hope you get something sorted soon.
    Best wishes,
  4. lazylegs

    lazylegs Moderator

    Hi kstarr,

    None of my doctors are linked either. When one of them writes labs or any test for that matter I make sure they include reports to go to each of the other doctors. Being cc'd in they are able to go to the lab site to get the latest tests and saves me from having to do all the leg work. On the day of my appointment I give the nurse a new list of my meds, the dates of labs and any updates on my health so the doctor can be aware prior to coming into the room. It saves time and by writing it ahead of time I can explain things more clearly.

    Take care,
  5. kstarr

    kstarr New Member

    Yes! I absolutely agree!! None of my doctors are linked at all! I fear that my care is falling through the cracks and things are getting missed because my doctors do not communicate with each other. I know they are busy, but I just wish there was a simple way for them to talk so they could be all on the same page about my care.

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