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ESA & Lupus - is there light at the end of the tunnel?

Discussion in 'Social Security / Disability Benefits' started by DnA, Jan 20, 2014.

  1. DnA

    DnA Registered

    I tend not to post but felt compelled to share my story and some positive news with regard to being assessed for ESA after claiming Incapacity Benefit for a number of years.

    Lupus has been the bain of my life for many years and despite a cocktail of drugs my specialist, who is excellent, struggles to keep me stable despite the usual myriad of daily drugs. I admit that I do voluntary work, primarily to keep myself sane, but frequently take time off as I can't get out of the house let alone to work

    Anyway, back to the point... I had an assessment in November and was lucky to be seen by a doctor. I was very honest about what I can and can't do, including the voluntary work, and have just received a letter to say that despite my voluntary work and being completely honest about what I can and can't do I have now been placed in the Income-related Employment Support Group basically meaning my benefit remains unchanged.

    I was very clear about the fact that I want to work but that my illness, explicitly Lupus, severely restricts my abilities to fulfill a part-time commitment, meaning a full-time role to provide adequate income to live off would be totally infeasible.

    So maybe I was just lucky, but it's worth remembering that honesty is always a good policy and there may be some hope somewhere that Lupus is finally being recognised.

    Take care and don't lose hope

  2. keebler

    keebler Moderator

    Great news DNA!
    You are so right about being honest. If you aren't honest how can the doctors help you?
    Take care,

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