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Lose SSDI after review period

Discussion in 'Social Security / Disability Benefits' started by Miknan, Jan 24, 2012.

  1. Miknan

    Miknan Registered

    I was wondering how many people lose their SSDi after getting it. More specifically, if you improve on a med after a couple years but are still too sick to really have a job if it's difficult to keep the SSDI after you are reviewed.
  2. pennylp

    pennylp Registered

    hi there,

    I am not sure where you are.. I am in Canada and have been on disability for a few years... I am not sure if you can lose it after you get it... I have had no problems as of yet...

    Love Penny
  3. Miknan

    Miknan Registered

    Hi Penny, in the U.S you periodically get reviewed. My wife will be reviewed in 5-7 years. If the doctors say she has improved, and I have to believe she will, they can take it away. God knows I want her to improve no matter what but I'm kind of afraid she improves, but not enough to work and loses her SSDI. The fact that she was surprisingly approved and we don't have any money concerns (knock on wood) at the moment takes some of my stress away.
  4. debatat

    debatat Moderator

    I know how difficult it can be to have to deal with this uncertainty. However it is best to try and take one day at a time. Lupus is so unpredictable, from one day to the next.
  5. Miknan

    Miknan Registered

    Surprise!!! Not 5-7 years but it's here now after only 28 months. I'm very nervous.
  6. prettymature84

    prettymature84 New Member

    Hi, any updates?
  7. keebler

    keebler Moderator

    Hi Prettymature84,
    This is a old thread, (2014)
    You probably won't hear from the person who started this thread.
    Take care,
  8. Miknan

    Miknan Registered

    I started this thread in 2014. My wife was able to keep her SSDI during that review. She has not been reviewed since but I guess it should be coming again soon. Life for my family has been very hard since this all started. . I don't see how my wife could ever work again and while losing SSDI would be another catastrophe for us I have bigger worries now. My 14 yr old daughter is starting to have some similar symptoms and we are awaiting test results.
  9. Miknan

    Miknan Registered

    Wow, actually started this in 2012. My wife got sick in 2011... strange, feels simultaneously like yesterday and 100 years ago. It's hard and sad to remember how life use to be.
  10. lazylegs

    lazylegs Moderator

    Sorry to hear your daughter is having issues. Hopefully you get a definitive answer soon.

    Take care,
  11. Miknan

    Miknan Registered

    Positive ANA results yesterday. Only 14 and heading down the same path my wife is on. I thought I'd cry but I'm strangely numb. I guess this is for another forum though.
  12. lazylegs

    lazylegs Moderator

    My daughter was just diagnosed so I know what you mean. She isn't as young but it stung anyway. At least now she is getting treatment.
  13. Miknan

    Miknan Registered

    I'm very sorry to hear that Lazylegs. My daughter hasn't been diagnosed with anything yet but I know.... Right now we are at that same frustrating starting point where it's at the GP level and have to find some specialist. We emailed my wife's Rheumy and not sure if he sees teens.
  14. lazylegs

    lazylegs Moderator

    Given the family history even if your wife's rheumy doesn't see teens maybe he will give you a referral of a good one that does.

    Take care,

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