Newbie from New Zealand | Lupus Forums at The Lupus Site
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Newbie from New Zealand

Discussion in 'Introduce yourself' started by theoptimist, May 12, 2017.

  1. theoptimist

    theoptimist New Member

    Hello everyone !
    Just joined :)
    Looking forward to like minded people
  2. Jessica1

    Jessica1 Moderator

    Hello theoptimist and :welcome:
    You're in just the right place for support and friendship. Do you have Lupus or another condition or are you in the process of investigation or diagnosis? I hope you enjoy being part of our community, it's good to have another new member.
    Best wishes,
    theoptimist likes this.
  3. theoptimist

    theoptimist New Member

    :flower:Hi Jessica ,
    Thank you for ya message :)
    I was diagnosed with SLE last decemeber and then 2months ago its been upgraded to BSLE (bullous lupus aka the skin blistering disorder)
    From what I have been told by my doctors it is a rare form .. so lucky me huh lol
    I glad to be a part of this forum

    The optimist
  4. keebler

    keebler Moderator

    Hi optimist and welcome to the forum.

    It seems we tend to add different diagnoses when diagnosed with lupus.
    You have found a great site, members here are the best.
    Take care,
    theoptimist likes this.
  5. theoptimist

    theoptimist New Member

    Thank you for your message
    And yes you are correct .. Lupus is so complex .. it's always something different for each person .. I'm hoping to learn more on this as I go on
  6. Jessica1

    Jessica1 Moderator

    My twin sister also has Lupus, which I was told wasn't that common (although there are other people here with siblings also diagnosed). Dare to be different, I say!
    theoptimist likes this.
  7. theoptimist

    theoptimist New Member

    Lol Jessica I know where you are coming from .. my younger sis is only 21 .. we have 9yrs difference between us . Sissy was diagnosed over a year ago with Lupus organ involved . And at that time I was diagnosed with ITP (low platelet disorder) and over time my sister is still with Lupus and last September my symptoms started with joint pains etc after a week holiday in Fiji . Anyways by January this year I was upgraded to the BSLE (blistering) as my Lupus has not affected any of my inner organs just my skin .. and yes Lupus is so complex nothing surprises me any more . Every time something new happens I just ask my doc can you manage it .. as long as the answer is YES I'm
    All for it
    Jessica1 likes this.

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