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Pregnant-not planned-on all kinds of bad meds :(

Discussion in 'Living with lupus' started by mooks, Mar 6, 2010.

  1. mooks

    mooks Registered

    Hey guys,

    I have a major problem :worried: I just found out I'm pregnant (only a month) and I have been taking all my meds and also my SLE has been flaring quite badly recently....(have stopped all meds apart from steroids until I see someone)

    I saw my GP but she was useless and said well you definately can't take plaquenil (and thats the only one I know I CAN take!!) So I'm seeing my rheumy on monday but I just don't know what to do :( I don't want to have to end this pregnancy but my nephro also said to me last time to not get pregnant!! and what if these meds I'm on have nasty effects of the baby?

    I feel like such a bad person for letting this happen

  2. greenhaggis

    greenhaggis Registered

    Oh Mooks, I will say congratulations, just because its happened and babies are beautifull things!

    I'm hoping that you get the news you want on Monday and can continue with medications! One thing I'm surprised with is that your GP has not tried to book you in for a baby Scan...its amazing what can be seen as early as 6 weeks (the heart beat and whether fetus is good size even for that stage and just a few things).

    I'm sure that your Rhuemi will do their best to get everything organised, like a referal to Midwife and the Gynae Specialist on Monday. Termination should lnot be decided upon first without you having a scan (and that is your right, so make sure you get an early one), there are always exceptions to the rule of damaged with drugs.

    No the same thing (as not Lupus medications), but when I was first pregnant I had only recently come off a medication called Roaccuttane (you sign a consent before starting this med, to say you'll have a termination if accidently conceive!). Well I was so scared (but I had stopped med only 4-6 weeks before conceiving). I was given an emergency scan, to check on things and medical people thought that even at this stage things were okay so I carried on with pregnancy. Must say this drug Roaccuttane does scarey things to unborn fetus! Had many scans during the pregnancy, more than the usual (due to my ill heath), but baby was born nice and healthy.:hug:

    I am hoping that you have a good ending, please try to stay relaxed and calm until Monday, I know thats a tough one.

    Stay strong, let us know how we can support you over the weekend, take special care of yourself,

  3. greenhaggis

    greenhaggis Registered

    I have been googling about rituximab iv and pregnancy, I can't find any articles saying that there is conculsive evidence of it harming the fetus. All articles seem to clonclude they don't know and like most other medications will err on side of caution and not use it.

    I have also found that rituximab iv seems to be used during pregnancies for some people with other serious illnesses!

    There are women that have had stronger chemo drugs whilst being pregnant, survived the cancer and had healthy babies.

    What I just want to really say, is I think things will be fine, have an early scan to make sure, and you will get Consultant Specialist care anyway due to Lupus so you and baby will be well looked after!
  4. debatat

    debatat Moderator

    Hi Mooks, just wanted to say I am thinking of you. You will be in a better place on Monday after you have spoke to the rheumy, and gotten medical advice. What a shame the gp wasn't much help. I hope they can get you in for an early scan. I do know someone who got pregnant after a kidney transplant, she was monitored closely but both her and the baby are fine!!!! Obviously she was on similar meds, but had no problems.

    Take care
  5. Katharine

    Katharine Registered


    I can understand how scared you must feel and your feelings of being a "bad" person but truly, these things do happen and all you can do is your best with what you've got.

    I can't remember any more exactly what you are on but I do know that plaquenil and steroids are often continued and that some people also stay on imuran (I don't know about the other immunosuppressants) where the risks of going off it are too great so it really is a thing to discuss with the docs and a SPECIALIST ob-gyne.

    Keep us posted and try not to worry yourself to death :grhug:

  6. mooks

    mooks Registered

    awww thanks for your replies guys. I am on lots of meds (see list at bottom of post) loads of them say bad things on the internet.. I have really bad tummy cramps too but my sister said that can be normal as theres no bleeding as your body is just changing...argh stress stress!!! I hate being a girl! and my rheumy is gonna kill me!!
  7. lin

    lin Registered

    Oh bless, i am really thinking of you right now, and hoping all goes well monday hun, what a prat of a gp not helping you at all grrrrrrrr!! shame on them...

    sending you a big (((((Hug)))) Lin xxxxxxxxx
  8. Rebecca_g

    Rebecca_g Registered

    Aww I'm sorry to hear how stressful this is at a time that should be full of excitement. Unexpected pregnancies are hard enough to adjust to, without having to worry about whether your medication could have caused extra problems. My first child was a complete surprise and I had been taking a lot of medication I shouldn't have - and all worked out ok - as soon as I found out I stopped taking the medicines. I guess because you're so early you can stop the dangerous medicines now, but I guess you also are worried about your own health. I'm sure your rheumy will give you all the help you need on Monday. Those tummy pains feel just like period pains, right? I think they happen as the womb starts to stretch and move up, so that sounds normal. Let us know how you get on. x
  9. Lily

    Lily Registered

    ((((((Mooks)))))) Just wanted to say I am thinking of you and I hope it all goes well on Monday :grhug:

  10. greenhaggis

    greenhaggis Registered



    Been wondering about how things are with you today!
  11. Vina-Del-Mar

    Vina-Del-Mar Registered

    Hi Mooks,

    Just wanted to say that I hope all goes well with the Rheumy and like everyone here send you my support too xxxxxxxxxxxx

    Let us know how it went.

    Love and hugs x

  12. mooks

    mooks Registered

    hello guys,

    well I saw rheumy today...he was totally lovely and I was soooo nervous. He said ignore all this doom and gloom warnings on the meds he is not concerned...however he is worried that I only stopped taking methotrexate 5 months ago and the guidelines say at least 6 months. He also said that as my lupus has a proven track record of being sensitive to estrogen I need to be prepared to have a pretty rough pregnancy, which could be very stressful. Theres a bit of blood and white cells in my urine but no protein so thats better than usual, but he said he will be there to look after me if I decide to go through with this. He has referred me to the high risk obstetrician and said hopefully she will be able to see me asap, he said see her even if I'm still not sure what I'm going to do as she will be able to really explain the risks and council me through it.

    So, yeah, still don't know what I'm going to do!! help!

  13. greenhaggis

    greenhaggis Registered


    Take time now to do lots of chilling!

    Perhaps phone your GP surgery and book an appointment with the Midwife as well, in my area this is quite normal! 1) See GP to confirm pregnant, 2) Book a Midwife appointment, 3) See midwife and they make sure you know whats what, organise and scan and consult with obstetrician.

    Most areas you can see GP Midwife and a consultant (and his midwifes), I know I did (I did not have choice as I was high risk for 5 pregnancies.
    Other options are total Consultant care (+hospital midwifes), lastely the most normal option is just midwife care. Along with all these you have your GP too!

    If you can go for Combined care of local midwife team alongside the Consultant care I would choose that option. It means that you have a nice personal care of a team of midwifes (same regular faces) to give you that every day support.

    Good luck!!!
  14. Katharine

    Katharine Registered

    Hi Michelle :hug:

    Well, I suppose that's a bit of a relief if not surprising as you're always telling us how lovely your rheumy is :bigsmile:

    What did he say about you stopping all the meds you are on? Do you have to stay off them?

    It's a tough time and lots of things to be thought about.


  15. KarolH

    KarolH Registered

    We support you no matter what you decide to do. You have some things to think about now.
    It sounds like the pregnancy is do able yet going to be pretty rough.
    The main concern is your health first, remember that.
    Keep us posted Mooks.
    xx oo
  16. lazylegs

    lazylegs Moderator

    Hi Michelle,

    Whatever you decide we will be here for you :grhug:

    Take care,
  17. Vina-Del-Mar

    Vina-Del-Mar Registered

    Hi Michelle,

    Im pleased that the rheumatologist is not too concerned and pleased that a good obstretician will be taking care of you if you decide to continue with the pregnancy. Will you be at Maidstone Hospital or Pembury? I had my daughter at Pembury 20 years ago and I found them to be very good as I have very rough pregnancies.

    Sending you loads of good wishes xxxxxxxxxx

    Keep us updated.

    Love and hugs

  18. keebler

    keebler Moderator


    Sending you some hugs :grhug:
    Remember we are just a click away if you need us.

  19. pennylp

    pennylp Registered

    Hi ,

    I just wanted to send you ((((((((((((((((((((HUGS)))))))))))))))))) I have been where you are now and I understand your fear.... Just have faith , your doctor will guide you... Good lucky to you...

    Love Penny
  20. LolaLola

    LolaLola Registered

    Dear Mooks, I would not dream of trying to influence you,but if you do go ahead, I would say that my pregnancies and deliveries were awful but I still wouldn't have been without the children for anything. All the same I can remember how frightening it was when I was expecting Immi, totally unplanned and with a Consultant who wanted to terminate the pregnancy and threatened to throw me off his books the week before she was born! I will be thinking of you and praying for you whatever you decide. Glad the Rheumy was good with you. Hope you have at least one close and trustworthy friend you can confide in.
    xxx Lola

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