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Sun Block Recommendations

Discussion in 'Medications' started by Clare.T, Jan 8, 2006.

  1. LoopyLoo

    LoopyLoo Registered

    I do tan very easily but since using Ultrasun I do not tan at all. It also helps with the nausea & dizziness that I was having. I like the fact that it is thick & sticky when I first put it on as I do feel I am protected.

    That's just me though.......

    My friends sister has Vitiligo & gets it on prescription. She couldn't live without it.
  2. Shelro

    Shelro Guest

    Hi...I am on my 3rd tube of the 60 spf from Canada. It really is much better than any other that I've tried in the past 2 yrs. I will continue to use it. Have a good day...See ya
  3. wheeliefab

    wheeliefab Registered

    For anyone in UK with lupus I thought i'd let you know that you should be able to get sunblock on prescription as you have a medical condition that is often associated with sun sensitivity/worse symptoms after sun/UV exposure. I asked my GP after seeing an article in my local lupus groups newsletter and now get "Uvistat" which works well for me. The one my GP prescribed has UVB factor 30 and 5 stars UVA protection. It doesn't cost me anything extra as I already had paid for a pre-payment prescription card due to the amount of prescriptions I have.
  4. Mrs H

    Mrs H Registered

    I also get my sun cream on prescription (UK).

    Dr didnt even argue - just signed it! :lol:

    Mrs H
  5. helloos

    helloos Registered

    Very good information that you all gave and I needed that one today ! :lol:

    We have lots of sun here and so I am wearing the short sleeves and at work now the fleur. lights are effecting me more because of it.

    I loaded up with 45 today and it is a little better but my arms are still red. At least it cut down the burning feeling.

    Do these also block it from the fleu.lights? I would think it does but I am interested in seeing if anyone has used for this also and what they used. The same for inside and out?

    I wish I could find one with pleasant smell that is not too oily. My arms are shining !
  6. sheila t

    sheila t Registered

    My Doctor gives me E45 Factor 50 sunblock...:) Sheila xox
  7. Lily

    Lily Registered

    Good question Paula :)

    I wear a UVA/UVB filtering one because thats all thats available to us.

    However the main emmission from Fluro lights is because of the mercury in them and its in the UVC spectum. Thats not something they have worked out how to eliminate, although if we could replicate the ozone layer then it would filter most of that out. They are also the most dangerous rays there are to humans.

    We can only get sunscreen that filters UVA and UVB as far as I know. So I guess if we cover our skin it helps and get diffusing filters for fluro lights to combat the emissions from the mercury.

  8. Lily

    Lily Registered

    Ok here's a bit more on Fluro lights from Wikipedia:

  9. Lily

    Lily Registered

    Good to see that Wikipedia even acknowledges this :wink2:

  10. helloos

    helloos Registered

    Thanks Lily.

    That is good to know.

    I can say that I put the block on and it does help from the fleur lights, but about 70% I would say.

    Without it, in short sleeves, I get red skin, burning, feel fatigued, get a fever and now I am noticing a dizzy collapsing feeling - which is not a good new symptom to have.

    I was in the mall today and under these lights for 30 minutes, had the block on, and somewhat red skin, somewhat burning, but the fatigue and dizzy and confusion was setting in.
  11. herbwormwood

    herbwormwood Guest

    vitamin D and sun

    Be aware that sun exosure is the most effective way for the human body to make vitamin D. Vitamin D is formed in the human body by the action of sunlight on the skin. In the UK the suns rays are only long enough to produce vitamin D in the skin from April until October.
    If you do not get enough vitamin D you can put yourself at risk of developing osteoporosis and a higher risk of cancer.
    Osteoporosis is also a risk with steroids.
    Discuss your vitamin D needs with your doctor.
    I am well aware of the role of sunlight in triggering lupus flares but having developed osteoporosis at an early age due to steroid use, I now wonder how much being kept out of the sun while my bones were still growing could have contributed.
  12. Jane_08

    Jane_08 Registered

    I agree with Loopyloo

    I use Ultrasun, normally you can get it in duty free a bit cheaper but john lewis stock it. Well recomended

    Only thing is..its like putting toothpaste all over you. My skin is really fair and sensitive. I never burnt or have prickly heat while using it.
  13. sun block

    can any one tell me which is the best sun blocker to use
    i have lupus for many years and can't find one that is right for me

    Liz :p
  14. Surferboy

    Surferboy Registered

    I've just read this entire sticky and I'm none the wiser as to what the best sunblock/screen is.

    A lot of people have suggested Ultra Sun. But then a lot of people have said this is no way strong enough. I know it all depends on individual skin type, but is there something which is suitable for all?

    I read somewhere else on here of Sun Sense factor 50. Any comments on that one?
  15. Clare.T

    Clare.T Registered

    I am not quite sure why you haven't gained any notions at all from this and the several other recent threads on the topic. If you are photosensitive it doesn't matter how dark your skin is. You want the best protection available. There isn't any one best - there are several that will do a good job.

    There are recommendations about what ingredients to look out for. Otherwise it is personal preference.

    I am very satisfied with sunsense spf 50 which I get on prescription Your pharmacist can give you the full list of those available on prescription

    See this recent post about ingredients to look out for, which I have just moved to medications section Link

  16. Surferboy

    Surferboy Registered

    Sorry Clare. I think I'm on info overload right now. And that coupled with worry, stress and anxiety I think is not making things sink in :(

    I understand that with photosensitivity you want protection, no matter what. What I want to know/cant seem to understand is a) Is there a difference between sunblock and sunscreen? b) As the body needs Vitamin D - which comes from the sun - surely we don't want 100% protection from the sun.
  17. Clare.T

    Clare.T Registered

    Hello Surferboy

    I can understand that you are very overwhelmed and anxious right now and suggest learning some simple relaxation techniques if you don't have any already up your sleeve. We all need to have good stress coping techniques.

    The terms sunblock and sunscreen seem to be used interchangably except I have the notion that sunblock isn't favoured these days because it gives the misleading impression that it completely blocks sun and thus leads to misuse andignoring the first principles of avoid and protect. Broad spectrum sun screen is a better term.

    As for Vitamin D, the amount of daily sun exposure needed to make vitamin D is usually said to be only ten minutes. My specialist dermy told me that unless one is living in a cave 24/7, we all get enough exposure from ambient UV meaning that it isn't coming straight down as one imagines but is all round us being reflected from surfaces both horizontal and vertical.

    It is worth having Vitamin D levels checked because deficiencies seem to be fairly common in lupus and there has been a lot in the news lately about deficiencies promoting other conditions. I guess certain diets might tend to be deficient in Vitamin D too. Make sure B12 levels are OK by the way - this simple test is surprisingly often neglected and can lead to all sorts of symptoms.
    Anyway, if you have any doubts about vitamin D you can always take a supplement, just don't overdose.

    As I said, I realise that your stress levels must be off the chart right now and very understandably, talk about learning curve! - I would be almost out of my mind and spending so much time destressing it wouldn't leave time for much else apart from life sustaining activities. Maybe the point has already come to give yourself a little break and not expect quite so much of yourself if it is intensifying your current anxiety levels We can all only do our best at any given time and aiming at being superhuman by knowing everything and having all the answers is a sure recipe for trouble and unhappiness.

    All the same, hold fast to these thoughts, first that there is only 'best' advice, no perfect solutions or guarantees. Everything can't be fixed simply by effort. That is hard for competent, sucessful, organised achievers to realise (and I don't even want use the control word :)).

    Second, that life isn't always going to be like this- things will settle down and sort themselves out even if it isn't quite how you envisaged and will start doing so as soon as you have seen a 'proper' doctor in whom you can feel confidence. Third, it takes time to adapt and adjust, if only to get to know your own limitations. Adaptation and coping are essential to living well with lupus but it doesn't come easy, for most of us anyway. It is hard to find then stride the fine line between 'giving in' to the disease and sensible emotionally and physically healthy acknowledgment of realities and limitations.

    My personal view is that aiming for remission isn't a very useful goal. If you do go into remission it will be great but totally unmedicated remission is not all that common and in my opinion unrealistic and brings the element of some sort of personal failure into the picture which is highly undesirable. We have enough to cope with without that. You should aim first for stability: disease control and symptom relief. Living as well as possible, the best quality of life has to be the goal.

    Your top priority right now, in my opinion, and the only proper focus of all your current efforts is to get a specialist appointment asap. The rest will come with time. Timely access to the best available medical care is an essential to the most successful treatment.

    Bye for now

  18. Surferboy

    Surferboy Registered

    Sorry Clare, just seen your kind and helpful reply to my post as I just came into this section to put up a post. Thank you for the advice :)

    But regarding sunsense; I used sunsense today on my face after a quick couple of trials on my arm to test for adverse reactions (pointless as the sun did not materialise after 10am in London :rolleyes:

    Thing is, my wife noticed redness on my right cheek (around the cheek bone). But there was nothing on the left cheek.

    I doubt this is a flare rash as there was no sun what-so-ever today. Also, if I had reacted to the sunsense, would I not have redness all over my arms and face as I used it all over today?

    Weird weird weird?!?!?!
  19. Clare.T

    Clare.T Registered

    Hello surferboy

    "Weird" you say. What isn't weird!
    You should know that UVA comes through at the same level all the time and UVB isn't that much less even when it's cloudy. There were a few quite bright periods in my part of London.
  20. Surferboy

    Surferboy Registered

    But I had lashings of sunblock on! And was outdoors for all of about 1/2 hour through out the entire day. And why only 1 cheek?

    Question. Oh so many questions :)

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