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Lupus

Not Diagnosed Yet?

A place for those who haven't yet had a lupus diagnosis, or are having trouble getting a diagnosis
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Newly diagnosed

A place where newly diagnosed lupus patients can get advice and support
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Living with lupus

Get support and advice about living and coping with lupus
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Symptoms

Discuss symptoms of lupus
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Medications

Discuss the medications used to treat lupus
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Tests and Procedures

Got a question about a medical test or procedure? This is the place to post it!
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Complementary therapies

Discuss complementary therapies and lupus
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Related Conditions

Discuss Fibromyalgia, Raynaud's, Sjogren's Syndrome, APS, etc
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Lupus News, Awareness and Research

Read the latest news and research on Lupus and related conditions. Post about Lupus awareness events
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Personal Stories

For members to post their own personal lupus stories. Please read guidelines in this forum before posting.
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Practical

Social Security / Disability Benefits

A place to discuss disability benefits in relation to lupus
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Looking Good, Feeling Better

Share tips on disguising hairloss, hiding rashes, skin care, etc
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Relationships & Lupus

Here, Lupus sufferrers can discuss problems with body image, relationships, and related issues
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Find a Lupus Doctor

Recommend or find a good lupus specialist here
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Community

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For birthday and celebration posts
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Chit Chat

For general chit chat & off-topic talk.
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Religion & Spirituality

A special forum for those who wish to make requests for prayers or discuss religion. Please respect the religious views of other members
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Medication Reviews

NSAIDs

For reviewing Non-steroidal anti-inflammtory drugs such as aspirin, ibuprofen, diclofenac, naproxen, etc.
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Antimalarials

For members to review their experience of antimalarial drugs such as Plaquenil and Aralen
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Corticosteroids

For members to review their experience of Corticosteroid drugs such as prednisolone, prednisone, hydrocortisone , etc
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Cytotoxic / immunosuppressives

For members to review their experience of using cytotoxic drugs such as Cyclophosphamide, Azathioprine, Methotrexate, etc
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Other meds

For members to review their experience of other medications not covered by the other forums, e.g. hormone based treatments, etc
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Latest Posts See all new posts
  1. The following link gives the latest guidance for rheumatologists on the Covid 19 vaccines with the medications we take https://www.rheumatology.org/Portals/0/Files/COVID-19-Vaccine-Clinical-Guidance-Rheumatic-Diseases-Summary.pdf Notice that all throughout they say for the physician to tailor...
  2. Not Diagnosed Yet?
    I’m not sure if it is worth pursuing. I have fibromyalgia symptoms, fatigue, rashes, IBS symptoms, and autoimmune thyroid disease. Does this look at all consistent with a mild malar rash?
  3. Living with lupus
    Hi guys, following on from my nephritis diagnosis, I've been offered a chance to trial Benulab. I know nothing of this medication so am simultaneously a bit apprehensive and positive. It's either this or myclofenate. Is anyone else on here trialling Benulab? If so, could you please give me...
  4. Living with lupus
    I hope that this message finds everyone well. I experience hypertension during my flares. Is there anyone who has the same experiences?
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