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Lupus

Not Diagnosed Yet?

A place for those who haven't yet had a lupus diagnosis, or are having trouble getting a diagnosis
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Newly diagnosed

A place where newly diagnosed lupus patients can get advice and support
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Living with lupus

Get support and advice about living and coping with lupus
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Symptoms

Discuss symptoms of lupus
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Medications

Discuss the medications used to treat lupus
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Tests and Procedures

Got a question about a medical test or procedure? This is the place to post it!
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Complementary therapies

Discuss complementary therapies and lupus
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Related Conditions

Discuss Fibromyalgia, Raynaud's, Sjogren's Syndrome, APS, etc
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Lupus News, Awareness and Research

Read the latest news and research on Lupus and related conditions. Post about Lupus awareness events
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Personal Stories

For members to post their own personal lupus stories. Please read guidelines in this forum before posting.
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Practical

Social Security / Disability Benefits

A place to discuss disability benefits in relation to lupus
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Looking Good, Feeling Better

Share tips on disguising hairloss, hiding rashes, skin care, etc
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Relationships & Lupus

Here, Lupus sufferrers can discuss problems with body image, relationships, and related issues
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Find a Lupus Doctor

Recommend or find a good lupus specialist here
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Community

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Chit Chat

For general chit chat & off-topic talk.
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Religion & Spirituality

A special forum for those who wish to make requests for prayers or discuss religion. Please respect the religious views of other members
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Medication Reviews

NSAIDs

For reviewing Non-steroidal anti-inflammtory drugs such as aspirin, ibuprofen, diclofenac, naproxen, etc.
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Antimalarials

For members to review their experience of antimalarial drugs such as Plaquenil and Aralen
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Corticosteroids

For members to review their experience of Corticosteroid drugs such as prednisolone, prednisone, hydrocortisone , etc
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Cytotoxic / immunosuppressives

For members to review their experience of using cytotoxic drugs such as Cyclophosphamide, Azathioprine, Methotrexate, etc
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Other meds

For members to review their experience of other medications not covered by the other forums, e.g. hormone based treatments, etc
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Latest Posts See all new posts
  1. Chit Chat
    The infusion nurse from my rheumy's office called last week to say she found a source for Evusheld to help prevent Covid. We had to drive 2 hours to one of the large University hospitals. Getting up at 3 AM wasn't fun but if it works it was worth it. I didn't have any side effects and neither...
  2. Tests and Procedures
    Hi all I am having trouble getting my 4th covid vaccine. In the uk we require a letter from your gp/consultant to prove that you need the vaccine. I contacted my gp last week to request a letter they got back to me today and said they don't provide letters for the covid vaccine, and to just book...
  3. Chit Chat
    Has anyone been given one of the vaccines yet? Lazylegs
  4. Forum Tech Support and Feedback
    (Let us know how you think in this thread. Due to the amount of feedback we will get, we are likely not able to reply to each of you, but we will be reading all of them. For any comments and feedback for further improvements, please wait till our next round of NPS surveys which is coming in a...
  5. Living with lupus
    Hello again… I know it has been a bit since I have posted. Hello to all old and new members. I have a question… Has anyone been diagnosed with RHUPUS? Today my Rheumatologist said I have RHUPUS. LOL 😄 I have been told I have RA off and on for many years but the blood work showed high positive...
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