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Lupus

Not Diagnosed Yet?

A place for those who haven't yet had a lupus diagnosis, or are having trouble getting a diagnosis
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Newly diagnosed

A place where newly diagnosed lupus patients can get advice and support
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Living with lupus

Get support and advice about living and coping with lupus
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Symptoms

Discuss symptoms of lupus
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Medications

Discuss the medications used to treat lupus
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Tests and Procedures

Got a question about a medical test or procedure? This is the place to post it!
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Complementary therapies

Discuss complementary therapies and lupus
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Related Conditions

Discuss Fibromyalgia, Raynaud's, Sjogren's Syndrome, APS, etc
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Lupus News, Awareness and Research

Read the latest news and research on Lupus and related conditions. Post about Lupus awareness events
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Personal Stories

For members to post their own personal lupus stories. Please read guidelines in this forum before posting.
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Practical

Social Security / Disability Benefits

A place to discuss disability benefits in relation to lupus
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Looking Good, Feeling Better

Share tips on disguising hairloss, hiding rashes, skin care, etc
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Relationships & Lupus

Here, Lupus sufferrers can discuss problems with body image, relationships, and related issues
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Find a Lupus Doctor

Recommend or find a good lupus specialist here
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Community

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For birthday and celebration posts
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Chit Chat

For general chit chat & off-topic talk.
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Religion & Spirituality

A special forum for those who wish to make requests for prayers or discuss religion. Please respect the religious views of other members
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Medication Reviews

NSAIDs

For reviewing Non-steroidal anti-inflammtory drugs such as aspirin, ibuprofen, diclofenac, naproxen, etc.
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Antimalarials

For members to review their experience of antimalarial drugs such as Plaquenil and Aralen
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Corticosteroids

For members to review their experience of Corticosteroid drugs such as prednisolone, prednisone, hydrocortisone , etc
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Cytotoxic / immunosuppressives

For members to review their experience of using cytotoxic drugs such as Cyclophosphamide, Azathioprine, Methotrexate, etc
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Other meds

For members to review their experience of other medications not covered by the other forums, e.g. hormone based treatments, etc
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Latest Posts See all new posts
  1. Hello, I've had dxd SLE for over 20 yrs now. But, because of worsening SLE, I was recently put on cellcept. I know, like plaquenil which I'm also on, it can take weeks to work. However, since starting it- my pain has tripled. Joint, muscle, connective tissue- ALL of it HURTS. It hurts so bad...
      0 replies   39 views
  2. Pembrolizumab is used in treating several cancers such as skin cancer, gastric cancer, lung cancer, and head and neck cancer. The brand name of this medication is Keytruda and it is an immunotherapy medication. This injection utilizes the immune system of the person to fight the cancer cells...
      0 replies   60 views
  3. I'm a new member (today) and I came here to search for information and stories about Serrapeptase, and honestly, i'm shocked that there's nothing on here. I discovered this digestive enzyme this week after having my worst flare ever. Someone on Facebook actually mentioned it and I started...
      4 replies   3K views
  4. My hair used to be very very straight and I am noticing that my hair is getting curly now. Have any of you had this happen due to a medication? I'm not sure what else would be causing it since nothing else has changed.
      13 replies   6K views
  5. Hello, I haven't been here in a while. My doctor has decided to start me on benlysta next week. I've been looking at videos by people who have had benlysta and a couple of them said they had a couple weeks of severe anxiety issues after the treatment. I was wondering if anyone else has had...
      9 replies   2K views
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