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Use this section to report any site issues or provide feedback toward improvements.
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Lupus

Not Diagnosed Yet?

A place for those who haven't yet had a lupus diagnosis, or are having trouble getting a diagnosis
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Newly diagnosed

A place where newly diagnosed lupus patients can get advice and support
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Living with lupus

Get support and advice about living and coping with lupus
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Symptoms

Discuss symptoms of lupus
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Medications

Discuss the medications used to treat lupus
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Tests and Procedures

Got a question about a medical test or procedure? This is the place to post it!
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Complementary therapies

Discuss complementary therapies and lupus
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Related Conditions

Discuss Fibromyalgia, Raynaud's, Sjogren's Syndrome, APS, etc
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Lupus News, Awareness and Research

Read the latest news and research on Lupus and related conditions. Post about Lupus awareness events
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Personal Stories

For members to post their own personal lupus stories. Please read guidelines in this forum before posting.
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Practical

Social Security / Disability Benefits

A place to discuss disability benefits in relation to lupus
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Looking Good, Feeling Better

Share tips on disguising hairloss, hiding rashes, skin care, etc
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Relationships & Lupus

Here, Lupus sufferrers can discuss problems with body image, relationships, and related issues
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Find a Lupus Doctor

Recommend or find a good lupus specialist here
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Community

Birthdays and Celebrations

For birthday and celebration posts
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Chit Chat

For general chit chat & off-topic talk.
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Religion & Spirituality

A special forum for those who wish to make requests for prayers or discuss religion. Please respect the religious views of other members
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Medication Reviews

NSAIDs

For reviewing Non-steroidal anti-inflammtory drugs such as aspirin, ibuprofen, diclofenac, naproxen, etc.
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Antimalarials

For members to review their experience of antimalarial drugs such as Plaquenil and Aralen
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Corticosteroids

For members to review their experience of Corticosteroid drugs such as prednisolone, prednisone, hydrocortisone , etc
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Cytotoxic / immunosuppressives

For members to review their experience of using cytotoxic drugs such as Cyclophosphamide, Azathioprine, Methotrexate, etc
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Other meds

For members to review their experience of other medications not covered by the other forums, e.g. hormone based treatments, etc
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Latest Posts See all new posts
  1. ok, here's a word game we can play. Basically I will post a word, then the next person (which in this case will be me) will make up three words from the word, then post another word for the next person. So, here goes ......... My word: table
  2. My doctor has discontinued Benlysta and is going to start me on saphnelo. I did a search and didn't find anything. Do any of you have experience with it? Brenduh
  3. Not Diagnosed Yet?
    I recently went to the Doctor after 3 years of worsening raynauds and ‘Rosacea’ rash on my face. Dr took one look at the rash and said it’s not like any rosacea she’s seen and has referred me to rheumatology for further investigations. Got some other markers which I’ve put down to other things -...
  4. I have just been recently diagnosed with a form of Lupus called tumid lupis erythematosus. I know that this means that I will get the flare-ups and am light sensitive, but I am unsure why I become so fatigued if this isn't the systemic form of the disorder. Can anyone tell me more about this...
  5. Chit Chat
    The infusion nurse from my rheumy's office called last week to say she found a source for Evusheld to help prevent Covid. We had to drive 2 hours to one of the large University hospitals. Getting up at 3 AM wasn't fun but if it works it was worth it. I didn't have any side effects and neither...
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