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Lupus

Not Diagnosed Yet?

A place for those who haven't yet had a lupus diagnosis, or are having trouble getting a diagnosis
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Newly diagnosed

A place where newly diagnosed lupus patients can get advice and support
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Living with lupus

Get support and advice about living and coping with lupus
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Symptoms

Discuss symptoms of lupus
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Medications

Discuss the medications used to treat lupus
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Tests and Procedures

Got a question about a medical test or procedure? This is the place to post it!
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Complementary therapies

Discuss complementary therapies and lupus
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Related Conditions

Discuss Fibromyalgia, Raynaud's, Sjogren's Syndrome, APS, etc
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Lupus News, Awareness and Research

Read the latest news and research on Lupus and related conditions. Post about Lupus awareness events
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Personal Stories

For members to post their own personal lupus stories. Please read guidelines in this forum before posting.
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Practical

Social Security / Disability Benefits

A place to discuss disability benefits in relation to lupus
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Looking Good, Feeling Better

Share tips on disguising hairloss, hiding rashes, skin care, etc
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Relationships & Lupus

Here, Lupus sufferrers can discuss problems with body image, relationships, and related issues
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Find a Lupus Doctor

Recommend or find a good lupus specialist here
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For birthday and celebration posts
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Chit Chat

For general chit chat & off-topic talk.
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Religion & Spirituality

A special forum for those who wish to make requests for prayers or discuss religion. Please respect the religious views of other members
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Medication Reviews

NSAIDs

For reviewing Non-steroidal anti-inflammtory drugs such as aspirin, ibuprofen, diclofenac, naproxen, etc.
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Antimalarials

For members to review their experience of antimalarial drugs such as Plaquenil and Aralen
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Corticosteroids

For members to review their experience of Corticosteroid drugs such as prednisolone, prednisone, hydrocortisone , etc
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Cytotoxic / immunosuppressives

For members to review their experience of using cytotoxic drugs such as Cyclophosphamide, Azathioprine, Methotrexate, etc
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Other meds

For members to review their experience of other medications not covered by the other forums, e.g. hormone based treatments, etc
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Latest Posts See all new posts
  1. Tests and Procedures
    Hi Not sure what to do. I’m allergic to all meds for lupus rheumatoid fibromyalgia and other Illnesses so all I take is pain killers. docyors say I should have the COVID jab but I’m to afraid coz of the way I act to mess. I know meds will save my life if needed but once this jab is in you you...
  2. Hello, I’m a 41m who was diagnosed with lupus , mostly clotting factors that keep me on warfarin. Over the last couple of years I’ve developed swelling in my fingers and joints when doing physical work like in the yard and carrying groceries. About six months ago I started to develop painful...
  3. Hi, I was wondering, does anyone else have issues with itching and burning legs, but mostly only at night time, or after bathing/getting overly hot? Every time I go through a flare it becomes really excessive for me every night but noticbly worse after a long hot bath. I get really itchy legs...
  4. Relationships & Lupus
    How do you get people to understand our fatigue. I work 40 plus hours a week and try to do as much as I can and my bf thinks I don't do enough or clean enough. I try explaining I'm at my limit and I'm so exhausted n he thinks I'm lazy.
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