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  1. Not Diagnosed Yet?
    Dear all, I was recently referred to a rheumatologist for "a low level of suspicion for lupus or another connective tissue disease" due to two years of unexplained symptoms. My symptoms include intense fatigue, migraines and headaches, peripheral neuropathy, GI symptoms, muscle aches, hair...
  2. Not Diagnosed Yet?
    Hi, I'll try to keep this brief, but I have a few concerns surrounding some bloodwork my rheumatologist ordered. I'm 20, female, undiagnosed, and have had a few symptoms over the years, most notably chronic fatigue. I know I can't diagnose myself on forums, but my rheumatologist can't speak to...
  3. Not Diagnosed Yet?
    Hi! Super new here and embarassed to be posting as I feel like this is very far fetched to be wondering! A few days ago I noticed this very faint rash on my face. It is not very noticeable at all and just looks like a bit of a flushed face which I typically get, however, it has lasted a few days...
  4. Not Diagnosed Yet?
    Hi I have a few questions and I'm looking for a bit of advice. A few years ago I began getting tongue swelling on multiple different occasions. This would happen typically after drinking alcohol, too much caffeine. It wouldn't be paired with any other symptoms. Allergy was ruled out and GP...
  5. Not Diagnosed Yet?
    I have yet to be diagnosed over seven years of on-and-off symptoms. From what I have read, all my symptoms (or the majority) correlate with lupus. However, my rheumatologist seems to think differently despite what my mother and family doctor believe. I was told I may never be diagnosed unless I...
  6. Introduce yourself
    I am new to the forum and wondered if you have positive ANA (1;320; 1:160; 1:80), both positive ANA/EIA and IFA/FANA, elevated D-Ddimer without DVT, elevated Ferritin, High CRP and borderline high ESR, restricitive lung disease, Hashimotos, Primary Parathyroid abnormality, raynauds, fatigue...
  7. Not Diagnosed Yet?
    Hi There - I am really new to forums so please bear with me! I am suffering 25/29 of the major symptoms of Lupus according to http://www.lupus.org/ , Mayo Clinic and http://www.lupuscanada.org/. I have been struggling with this for almost 2 years with no firm diagnoses. I have had extensive...
  8. Not Diagnosed Yet?
    I posted a while back with my symptoms and labs. At that point, the only significant lab I had was a positive ANA (1:640, speckled). Oh, and a strong family hx of SLE (mom and great grandmother both dx with it). Joint pain (multiple joints, usually all over but sometimes isolated to just...
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