[Christine UK]

Just wondered who has been on this...

Had my 2nd treatment...its the sickness the day after and tiredness which is hard..i have been given anti sickness tabs which do help..

Also hair loss did it happen to you ?
thanks in advance.

 

[Christine UK]

Thanks Raglet...

My hair has been thinning for months prior to the treatment with the Lupus and everything flaring.so they said this may help to even thicken it up...

They said same as you it wont fall out as such just thin, but of course that of course may not happen..

if it does anyone know of a good Bandana shop !

 

[Christine UK]

Thanks everyone.

I was told the cellcept is fab for organ involvement...i was on that but now have been taken off it.

When the cyclo is finished in Aug i am to start back on azathioprin as it is excellent for Brain involvement.. x x

 

[Christine UK]

update !...

well i am getting ther 4th treatment should have been last tues but i had a call to say my white cells and neutra something wrere to low plus my inr was 6 !

so had bloods retaken last fri and received a call today to say white cells better but neutra things still low but i am to have my traetment tomrrow but a smaller dose..

the hair thing...well i am happy to say my hair isnt falling out as much as when iw anst having the treatment and seemed to be constantly flaring so fingers crossed it stays ok...

wings its just a day case for me...no staying in... x x