Can someone please help me?
I am more confused than ever!!! I feel like giving up understanding all this and want to cry!
I had my rheumy appointment last month and he said he was going to run the whole lupus tests again since it has been awhile since he ran all of those tests. I have been going to him for about the past three years. My ANA was taken at two different times and was both times 1280. With the ANA results and my symptoms he said I had something auto immune going on and felt maybe lupus/sjogrens. He has had me on both plauqenil and relefen for almost three years now. All my other blood tests have been okay which makes it difficult to make a positive dx.
My first question: If someone has a high ANA like mine of 1280, will it ever come back negative or will it always be high? Will the medications I am on ever bring it down to normal range?
Second question: I asked for copies of my blood results. I have always received them in the past and they are always several pages of the breakdown of each test and their results. This time I received four pages that had hardly anything on them!
The following are the test names:
Page (1)
C3 result 133.0 reference range 90.0 - 207.0 (okay I understand this)
C4 result 26.4 " " 17.4 - 52.2 ( I understand this also)
Page (2)
TSH result 1.94 reference range 0.34 - 4.82 (this I assume is thyroid?
Is it one test?)
Page (3)
Complement, total (CH50 units) result 60 reference range 31 - 66
What is this test? It is in the normal range but on the high side of normal. There was a note with this result page that talked about elevated values of ch50. What is this and what is it for? Is this several tests combined and given one result?
Page (4)
ANA Screen EIA W/REFL TITER IFA (REFL)
ANACHOICE(TM) SCREEN Negative What does this mean? Is this a group of several lupus tests or just another ANA test? If it is just an ANA test, why did it go from being so high twice to negative?
I am sooooo confused! Does this mean I don't have lupus and if not what is wrong with me???? I don't want lupus but when you can put your finger on what is wrong with you it gives you some direction and focus. :sad:
If you have any ideas to pass along, it would be appreciated.
Thanks,
Janice
I am more confused than ever!!! I feel like giving up understanding all this and want to cry!
I had my rheumy appointment last month and he said he was going to run the whole lupus tests again since it has been awhile since he ran all of those tests. I have been going to him for about the past three years. My ANA was taken at two different times and was both times 1280. With the ANA results and my symptoms he said I had something auto immune going on and felt maybe lupus/sjogrens. He has had me on both plauqenil and relefen for almost three years now. All my other blood tests have been okay which makes it difficult to make a positive dx.
My first question: If someone has a high ANA like mine of 1280, will it ever come back negative or will it always be high? Will the medications I am on ever bring it down to normal range?
Second question: I asked for copies of my blood results. I have always received them in the past and they are always several pages of the breakdown of each test and their results. This time I received four pages that had hardly anything on them!
The following are the test names:
Page (1)
C3 result 133.0 reference range 90.0 - 207.0 (okay I understand this)
C4 result 26.4 " " 17.4 - 52.2 ( I understand this also)
Page (2)
TSH result 1.94 reference range 0.34 - 4.82 (this I assume is thyroid?
Is it one test?)
Page (3)
Complement, total (CH50 units) result 60 reference range 31 - 66
What is this test? It is in the normal range but on the high side of normal. There was a note with this result page that talked about elevated values of ch50. What is this and what is it for? Is this several tests combined and given one result?
Page (4)
ANA Screen EIA W/REFL TITER IFA (REFL)
ANACHOICE(TM) SCREEN Negative What does this mean? Is this a group of several lupus tests or just another ANA test? If it is just an ANA test, why did it go from being so high twice to negative?
I am sooooo confused! Does this mean I don't have lupus and if not what is wrong with me???? I don't want lupus but when you can put your finger on what is wrong with you it gives you some direction and focus. :sad:
If you have any ideas to pass along, it would be appreciated.
Thanks,
Janice