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Discussion Starter · #1 ·
:wavesmile: Hi everyone

Ive been away for a while, havn't been feeling to good. Everything seems to be happening at the same time. The worst being i've lost my brave ,brave brother. He lost his battle with Lukemia. He was only given 6 months but he battled on for 18 months. I am going to really miss him, he was a lovely gentle man.:needhug:

Along with the usual tiredness I'm now having problems with my memory and I can't concentrate on anything for long. I'm also feeling very panicky and I don't know why. I havn't walked very well for a long time but what i do now can only be discribed as a painfull, breathless shuffle. A 10 minute walk to work now takes nearly 25 minutes.

I had my appointment at the Lupus clinic at Freeman Hospital on Thursday. I expected it to go as it normally does with them patting me on the hand,telling me i'm copeing very well and sending me on my way without any medication. This time I sat and poared my heart out to the consultant and she sat and listened to all my concerns about not being able to continue working for the next 11 months until I retire.I ended up just about begging for some help to get me through.

The outcome is that she has ordered me a walking stick which i hope will take the edge off the walk to work. She has taken 11 philes of blood:jab: so I can be tested for everything. I was sent to get a chest Ex-ray and an E.C.G. The chest Ex-ray was fine but there's something on the E.C.G. she thinks may be causing the breathlessness. I also have to go for a brain scan. I'm a bit scared about having this done. :worried:

Anyway this is why I havn't been on the message boards for a few weeks.

Ann
:love:
 

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Hello again Ann
Much sympathy and condolances on the passing of your brother.:hug::hug::hug:

You did absolutely the right thing letting it all out and I hope you'll soon be getting really helpful treatment. The docs can't know how things are unless we tell them. I think the panicky feelings might be associated with some of the symptoms possible heart and breathlessness but of course there are usually other factors too, such as the loss of your brother and worry about being able to continue working. Bereavement in my experience makes one so aware of one's own mortality and really knocks us for six at the best of times

Do you mean you haven't been on any lupus medicines so far ?
The Freeman has a very good reputation so let's hope they live up to it.
When do you get the results ?
Please keep in touch and let us know how you get on.

All the best
Hugs
Clare
 

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I'm so sorry about the loss of your brother, it is hard to watch a loved one struggle so hard. I can understand the apniky feelings you're having,I have been having anxiety attacks. I hope you can get things straightened out and get on some meds that will help you Please let us know how you are doing. Take Care. Karly:there: :love2:
 

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elisabethm
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Hi Ann i am so sorry to hear of the sad loss of your brother you have my heart felt sympathy.There is no use in saying it will get better as no one can put a time on anything like that but i will be thinking if you.As for your own heath i do hope you get the answers to your Questions you are waiting for can you not get a sick note from your doctor when they know the problems you are haveing MY Best Wishes To You From Elisabeth
 

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Discussion Starter · #5 ·
Hi again

Thank you all for your kind words it is much appreciated.
I would rather not go on the sick if I can help it Elisabeth. I would only sit on my own in an upstairs flat feeling sorry for myself. When I'm at work it I forget about the aches and pains for the most part and the girls I work with help me with the things I find difficult to do.
I will keep you informed on how things go Karly. I hope Your anxiety attacks subside shortly for you.
I have another appointment at the Lupus Clinic in June Clare, by that time all the results of the blood tests will be in and I should have been for a brain scan by then.
Yes Clare I do mean I have never been on any Lupus medication but that is mostly my own fault. I had a very bad consultation years ago when my legs first started to hurt. I was made to feel like I was a liar and that there was nothing wrong with my legs at all. After that I just stopped telling them anything, as far as they know I have been managing fine on my own. I have to admit this is pretty much true (My body just loves ibuprofen). However my health has taken a downward plunge this past 6 weeks and I realy feel I need more help.
So heres hopeing. I'll keep you up to date.
Thanks again

Ann xx
 

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Discussion Starter · #6 ·
Hi all:wavesmile:

Just thought I would update you. I recieved 2 letters from hospital today.I have an appointment to go for an echo on May 8th and another to go for breathing tests on the 15th May.:worried: No appointment for a brain scan yet though. I have to say that my muddled brain is functioning a little better now thank goodness.:woohoo:

Ann xx
 

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Hello Ann ! :)

My, they are getting cracking ! I hope you'll be feeling much better before long. I let a bad experience with some psychopath doctors trained in Belsen and graduated from Dachau, put me off getting treatment for a couple of years, so you are far from being the only one. They will all rot in the hot place.

All the best

Here's to better days

Clare
 

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Dear ann, i am so so sorry for your loss of your brother,
And sorry to hear your having lots of problems with flaring, i hope the blood test show things up for you,

seems like you have lots going on hun, nothing worse than not feeling our selfs hey? I also find it hard to walk abd breathe, even chatting getsme out of breath.

i wish for you better days ann, im sending you a great big (((((((((((((((((((HUG)))))))))))))))))))))


luv Lin xxxxxxxx:hug: :kiss:
 
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