[littleann]

:wavesmile: Hi everyone

Ive been away for a while, havn't been feeling to good. Everything seems to be happening at the same time. The worst being i've lost my brave ,brave brother. He lost his battle with Lukemia. He was only given 6 months but he battled on for 18 months. I am going to really miss him, he was a lovely gentle man.:needhug:

Along with the usual tiredness I'm now having problems with my memory and I can't concentrate on anything for long. I'm also feeling very panicky and I don't know why. I havn't walked very well for a long time but what i do now can only be discribed as a painfull, breathless shuffle. A 10 minute walk to work now takes nearly 25 minutes.

I had my appointment at the Lupus clinic at Freeman Hospital on Thursday. I expected it to go as it normally does with them patting me on the hand,telling me i'm copeing very well and sending me on my way without any medication. This time I sat and poared my heart out to the consultant and she sat and listened to all my concerns about not being able to continue working for the next 11 months until I retire.I ended up just about begging for some help to get me through.

The outcome is that she has ordered me a walking stick which i hope will take the edge off the walk to work. She has taken 11 philes of blood:jab: so I can be tested for everything. I was sent to get a chest Ex-ray and an E.C.G. The chest Ex-ray was fine but there's something on the E.C.G. she thinks may be causing the breathlessness. I also have to go for a brain scan. I'm a bit scared about having this done. :worried:

Anyway this is why I havn't been on the message boards for a few weeks.

Ann

 

[littleann]

Hi again

Thank you all for your kind words it is much appreciated.
I would rather not go on the sick if I can help it Elisabeth. I would only sit on my own in an upstairs flat feeling sorry for myself. When I'm at work it I forget about the aches and pains for the most part and the girls I work with help me with the things I find difficult to do.
I will keep you informed on how things go Karly. I hope Your anxiety attacks subside shortly for you.
I have another appointment at the Lupus Clinic in June Clare, by that time all the results of the blood tests will be in and I should have been for a brain scan by then.
Yes Clare I do mean I have never been on any Lupus medication but that is mostly my own fault. I had a very bad consultation years ago when my legs first started to hurt. I was made to feel like I was a liar and that there was nothing wrong with my legs at all. After that I just stopped telling them anything, as far as they know I have been managing fine on my own. I have to admit this is pretty much true (My body just loves ibuprofen). However my health has taken a downward plunge this past 6 weeks and I realy feel I need more help.
So heres hopeing. I'll keep you up to date.
Thanks again

Ann xx

 

[littleann]

Hi all:wavesmile:

Just thought I would update you. I recieved 2 letters from hospital today.I have an appointment to go for an echo on May 8th and another to go for breathing tests on the 15th May.:worried: No appointment for a brain scan yet though. I have to say that my muddled brain is functioning a little better now thank goodness.:woohoo:

Ann xx