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Discussion Starter #1
Hey everyone

Hope you are keeping ok? I have a question? I hope you don't mind

I think I am coming to the end of a flare and this one seems to be dragging on. It started just before easter with a bit of a rash starting so with it being easter I thought I would phone my GP and get some steroids to kick it on the head! Got rid of the rash but as the steroids ended I started with hot flashes, and which progress to joint / muscle pain to the point I felt like I had been beaten with a meat tenderiser:eek: (does anyone else feel like this???)!! I've also been having sore throats not to the point of wanting to suck the life out of a box of strepsils but enought to know it is there. I have also had sores in the corner of my mouth and then a coldsore on my lower lip.

Then about 4 weeks ago I felt like I was having a dizzy attack but as on tabs for that I thought I would get away with it... How wrong was I... three weeks ago it hit me. I doubled up the drugs and waited and it didn't fix it. So monday I went to the doctor and she has added in some more dizzy meds. She is stumped as my MRI was normal, so I now have to wait for these drugs to kick in . In the meantime I am having to work from home cos I don't feel safe enough to drive. I feel guilty I am letting my boss down but they are usually pretty good because they know I don't kick the backside out of it!

How long do these things go on for and is it normal for them to get worse each time????
 

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Flares vary in length so it is difficult to predict how long one will take. Then you have the additional problem of catching something else during a flare that has similar symptoms and it is hard to tell what is going on. The flares do not necessarily get worse each time. If you catch one soon enough you may be able to knock it out quickly. I find if I ignore all the warning signals to get additional rest then I end up with a whopper.

You might want to ask for a referral to an ENT for your dizzy spells. It sounds like you need some additional testing to find out what is going on. I hope those drugs kick in quickly.

Take care,
Lazylegs
 

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Hey Granny :wavey:

Hopefully the meds will kick in real soon and help with the dizzy spells you are having. As for flares - mmmmmm how long is a piece of string??? as lazylegs said each flare can vary in how severe it is, what symptoms you get and also how long it lasts, plus each person is different too.

As for the work situation - i wouldn't worry about it, you said that you don't kick the backside out of it, plus you are working from home, most people when on sick don't do any work at all so they have no reason to complain, they are lucky to have you.

Hope you feel better soon, take care :hug: Jo :hug:
 

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Discussion Starter #4
Thanks Jo and Lazylegs

I do tend to "ignore" the warning signs a bit especially when it's busy and I am not really paying attention so I don't really have room for complaint, it's my own fault, but then again I have always tended to put me last may be I should start to think about reversing it:hehe:.

As for referral to the ENT Lazylegs, been there, the GP I saw at the time thought it was menieres so sent me along to see the specialist. did hearing tests and MRI and said there was nothing wrong.... go figure. I will just have to put it down as one of those things and put up with it until something else comes along to get a diagnosis:tears:... story of my life really (as it has probably been for many others along their journey)!

Claire
 

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The Other Illinois Tammy
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It is hard to say as they change for me depending on what caused the flare in the first place and if I can get enough rest to help get it under control. It can be scary to have the dizzy spells I get them often but just deal with them. I have enough medicine and adding more is not something I wish to do. Most of what I take also have dizziness as a side effect so I am don't think that would help to add a non dizzy pill lol. It is nice that you can work from home and that means you are not letting your boss down you are still working hon.

I do hope that you start to feel better soon.
 

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Discussion Starter #6
Thanks Tammy. My Dizzy spells started before the Lupus diagnosis, so before all the meds really. It was at the stage were it was constant but after 2 weeks on Betahistine it seemed to have it under control, so I had four months of feeling dizzy free so to speak. I started a Flare at Easter and it just went on from there. I think the moral of the story is "Listen to my body" and rest when it tells me to. I just feel guilty that I am letting everyone down:sad:.

Claire xxx
 

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(((Claire)))

Don't feel bad about work. You said you were doing it from home. Most people home on sick days would never do work from home.

You need to take care of yourself and get to feeling better. Be kind to yourself.:)

Love,
Lyn
 
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