Joined
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17 Posts
Hello to everyone,
Been visiting this site for a while so i thought i'd join for some support. Family and friends think im fine 'cos i look well because of my rosy cheeks and my rheumy thinks now that i've finally been diagnosed with sle, i should accept it and move on and look on the bright side because none of my major organs seem to be involved yet......Idiot ! Some doctors really leave me gobsmacked.
I was diagnosed with sle and fibro about a month ago after 9 months of feeling very ill with most of the symptoms a lot of you have and to be honest, although i'd heard of lupus, i didnt really have any knowledge of it despite working in the nhs, so this site has been invaluable to me and has made me feel a lot more positive about living with lupus.
I've been taking prednisolone for 8 months and have just been started on plaquinil so hopefully that will kick in soon because im really struggling working full time and i cant afford to go on the sick which my rheumy suggested.I suggested he pay my bills then but unsuprisingly he wasnt keen lol.
Anyway, thanks for listening, it's just nice to vent once in a while and if i havnt bored half of you to sleep already, Goodnight and i look forward to getting to know you all.
Been visiting this site for a while so i thought i'd join for some support. Family and friends think im fine 'cos i look well because of my rosy cheeks and my rheumy thinks now that i've finally been diagnosed with sle, i should accept it and move on and look on the bright side because none of my major organs seem to be involved yet......Idiot ! Some doctors really leave me gobsmacked.
I was diagnosed with sle and fibro about a month ago after 9 months of feeling very ill with most of the symptoms a lot of you have and to be honest, although i'd heard of lupus, i didnt really have any knowledge of it despite working in the nhs, so this site has been invaluable to me and has made me feel a lot more positive about living with lupus.
I've been taking prednisolone for 8 months and have just been started on plaquinil so hopefully that will kick in soon because im really struggling working full time and i cant afford to go on the sick which my rheumy suggested.I suggested he pay my bills then but unsuprisingly he wasnt keen lol.
Anyway, thanks for listening, it's just nice to vent once in a while and if i havnt bored half of you to sleep already, Goodnight and i look forward to getting to know you all.