[RJN929]

Hello, I was diagnosed with lupus 3 years ago and have been doing pretty well after that initial flare. I have for the last 4 weeks been having alot of abdominal pain and nausea. I went to the Dr. & she did a UA and found alot of blood in my urine & thought I had kidney stones. Went for a CT & no stones but still pain & nausea & what feels like abdominal inflammation. Does anyone have any thoughts? She started me on antibiotics in case there is an infection but really isn't sure what is going on. Thank you.

Ronee

 

[sadieone]

Hi Ronee,

I would have abdominal cramping and pain when i was on prednisone. It felt like my intestines where getting all tangled up inside because they were inflamed and didn't have anywhere else to go.

I no longer take prednisone and the only abdominal pain i experience now is my IBS and that is a different feeling.

Since they checked your kidneys maybe you should see and gastroendriologist(spelling ) and if nothing shows there a gynocologiest. Just don't give up.

A nurse once told me if it hurts and they can't find the problem, that doesn't mean a problem does not exist. Be persisted and try other options to find the problem.

Like when i had back pain. Doc checked kidneys,, and nothing,, xray showed nothing, i took myself to gastro, nothing,, gynocologist want to do exploritory surgery, i said no thanks cuz i heard of too many people ending up with hysterrectamies. Then I went to rheumy because i was also experiencing flu like symptoms and the internet when googled said rheumatologist.

It was the rheumy who discovered that i not only had lupus but i had 2 slipped disks in my back through an MRI. He said xrays would not have picked it up.

So Keep trying, pain is not in your head.
Good Luck

 

[Maia]

For me those were symptoms of kidney stones, and when the pain was in the upper right quadrant it was gallstones. A CT scan will not find gallstones, only an ultrasound would.

Sometimes blood in the urine can be due to lupus itself - this may or may not be related to lupus.

It sounds like it's time to move on to a specialist if your GP is out of answers though... or go for a second opinion. I hope you find some answers and a solution soon - that's a long time to endure that kind of pain and nausea.

 

[RJN929]

Thank you for that. I have no gall bladder and I'm not on steroids. I didn't know that blood in the urine can be from the Lupus. Thanks again.

Ronee

 

[marymackay]

Abdo Pain

Hi Ronee
sorry about your abdo pain. I too have abdo pain and great distension. Investigation into lupus etc has been over 18months- but have had so many illnesses over life.
Scans show hernias, gall bladder, kidney probs, as well as lupus probs. Lupuslike symptoms d/x allowed Plaquenil since Sep, which helps a little.
Urologist found high redcells in urine-40, so sent me to public urologist- had cystoscopy, but to be further inestigated, as have had kidney probs all life. Still finding out, but colonoscopy and endoscopy delayed for long waiting lists.

I am allergic to penicillin and particularly sulfa, so all URTIs, kidney, sinus, skin have not led to any meds that help. Hope you find some help also:wink2:.