Hi there everyone
I post here because lately i've been thinking a lot about my relationships with people, and especially with my family, after my diagnosis 1 year ago.
I think people really find it difficult to understand lupus and this is really frustrating. but I also experience another difficulty: I manage quite well to cope with lupus, I am an optimist, a positive person and, thank god, i am happy and i love my life, but my mother keeps telling me that she considers my being "happy" as a way to give up trying to find new solutions. She doesn't want to believe that there's no definite cure for lupus and would want me to see a different doctor everyweek. Of course lupus has changed my life, but i find this exausting: i don't want to have false hopes.
what do you think?
I post here because lately i've been thinking a lot about my relationships with people, and especially with my family, after my diagnosis 1 year ago.
I think people really find it difficult to understand lupus and this is really frustrating. but I also experience another difficulty: I manage quite well to cope with lupus, I am an optimist, a positive person and, thank god, i am happy and i love my life, but my mother keeps telling me that she considers my being "happy" as a way to give up trying to find new solutions. She doesn't want to believe that there's no definite cure for lupus and would want me to see a different doctor everyweek. Of course lupus has changed my life, but i find this exausting: i don't want to have false hopes.
what do you think?