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Discussion Starter · #1 ·
Hello

I need your help. I posted the other week as I was feeling really ill and pathetic. Am still pretty ill, but not feeling quite so pathetic, which is obviously a good thing.

I have an appointment with my dermatologist at the end of this month. This will be my second appointment and to be honest I am dreading it. The first appointment was peculiar to be honest I had a consultant that had the bedside manner of Frankenstein. He didn’t look me in the eye once, appeared to be not listening to a word I said and basically made me feel somewhat invisible.

He requested blood tests, urine tests etc and then said oh yes patch testing. When I asked what he thought it was, he stood by the door and said “mmmm could be an allergy, probably Lupus” and then left the room.

So I had the blood tests done, but I was not keen to have any patch testing done as I had been seeing a specialist nurse for over a year and she had specifically said to me that patch testing was not conclusive and my rash presented in a way to make her certain it was not a contact allergy problem. Even so I did elimination tests to rule out anything I was using, but these proved to be futile, as nothing made any difference.

So when I went back to the hospital I said this to the nurse that I wanted the blood tests results before I proceeded further. She said she couldn’t give me the results? So I said well I want to see the consultant then, so obviously I had to make another appointment.

I had subsequently requested a copy of my notes from the hospital, I do this every so often as there is so much going on and I never receive copies of the letters my consultants send to my doctor.

It seems that all my blood tests results are lost, so no wonder the nurse couldn’t tell me what was going on there.

So now my dilemma. I have been down this long diagnosis road before, as I have severe endometriosis (and a host of other ailments), so I understand that this is not going to be quick and easy. But what do I say to this guy to make him listen and talk to me like I am a human being and not some practice dummy? I feel fired up at the moment but as soon a I get into the consultation room I do tend to turn hospital shy and feel very small. I am taking somebody with me for back up, so I wont be alone. But I just wonder what I should say to make this a successful appointment and not another waste of time?

Any advice would be much appreciated. I am sorry I have gone on a bit, but it is just so frustrating.

Thanks for reading!

Regards

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67 Posts
Discussion Starter · #4 ·
When I say the tests results are lost, I mean lost in space, lost in transit, or misplaced. These were taken at the hospital. I have spoken to my doctor and she was told they have no record of any blood tests being taken (she was not impressed). Thus lost!

I am hoping that they will miraculously turn up at my appointment, but I wont hold my breath. I will write down what I am going to say, but I was hoping for a little more info/advice to help me out.
:worried:
 
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