Know how you feel but be a PATIENT patient!
The diagnosis of Lupus seems to me to be made more from a subjective intake than scientific data. I am not certain anyone can be unequivocally diagnosed as having Lupus. It has taken over three years and two rheumys for me to be given a tentative diagnosis of Lupus, basically being told I have a connective tissue disorder that is reminiscent of Lupus. Needless to say, Lupus presents the GP and Rheumy (s) with a hugely frustrating diagnostic dilemma. There does not seem to be a cookie cutter-like pattern to determining the diagnosis. For example, all of my labs have been marginal (at best). The symptoms that I have experienced are joint pain and swelling and fatigue. I had some low grade fevers, cyclic in nature until I was treated with placquinel and methotrexate. Since then pain has improved but still exist and I have a litte more energy but no fevers.
The trail to treatment is an arduous experience one but hang in there. You are not crazy, although you probably feel that way. This thing takes a toll!
Hopefully you can get treatment soon.
Good luck-
Bernie
The diagnosis of Lupus seems to me to be made more from a subjective intake than scientific data. I am not certain anyone can be unequivocally diagnosed as having Lupus. It has taken over three years and two rheumys for me to be given a tentative diagnosis of Lupus, basically being told I have a connective tissue disorder that is reminiscent of Lupus. Needless to say, Lupus presents the GP and Rheumy (s) with a hugely frustrating diagnostic dilemma. There does not seem to be a cookie cutter-like pattern to determining the diagnosis. For example, all of my labs have been marginal (at best). The symptoms that I have experienced are joint pain and swelling and fatigue. I had some low grade fevers, cyclic in nature until I was treated with placquinel and methotrexate. Since then pain has improved but still exist and I have a litte more energy but no fevers.
The trail to treatment is an arduous experience one but hang in there. You are not crazy, although you probably feel that way. This thing takes a toll!
Hopefully you can get treatment soon.
Good luck-
Bernie
