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13 Posts
Hello all,
Well a year ago I was diagnosed with drug-induced lupus.....but then that was scrapped when I still kept getting the symptoms after stopping my tablets (oxytetracycline).
I still have so many symptoms like fatigue, joint pains, dry eyes, generally feeling of crappiness, headaches and other numerous things. My major complaint is the joint pain mainly in my knees. My rheumy, at every appointment keeps going on about me having hypermobile joints...basically I'm flexible so my joints are weaker. But I really feel like thats an excuse. I already knew I was flexible. I'm a belly dance. But why is this hypermobility causing me problems dancing now? I mean I hardly dance now because I'm too tired and have too much pain....thats NOT because of my hypermobility. Don't get me wrong, my rheumatologist is very nice and she does listen....but it's just frustratng that she wont actually say I have this or I have that. She has put me on Plaquenil although I haven't really noticed a change as of yet (I've been on it for 4 months).
I don't know if I'm explaining this well....but I would just like to be diagnosed with something just for my own peace of mind.....if that makes sense.
Sorry for my rant
Jules xxx
Well a year ago I was diagnosed with drug-induced lupus.....but then that was scrapped when I still kept getting the symptoms after stopping my tablets (oxytetracycline).
I still have so many symptoms like fatigue, joint pains, dry eyes, generally feeling of crappiness, headaches and other numerous things. My major complaint is the joint pain mainly in my knees. My rheumy, at every appointment keeps going on about me having hypermobile joints...basically I'm flexible so my joints are weaker. But I really feel like thats an excuse. I already knew I was flexible. I'm a belly dance. But why is this hypermobility causing me problems dancing now? I mean I hardly dance now because I'm too tired and have too much pain....thats NOT because of my hypermobility. Don't get me wrong, my rheumatologist is very nice and she does listen....but it's just frustratng that she wont actually say I have this or I have that. She has put me on Plaquenil although I haven't really noticed a change as of yet (I've been on it for 4 months).
I don't know if I'm explaining this well....but I would just like to be diagnosed with something just for my own peace of mind.....if that makes sense.
Sorry for my rant
Jules xxx