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My Rheumy, at times Ive asked about diet and stuff I could do to help myself. (Thanks 2 whoever mentioned the Lupus book Dr Wallace )in one of the posts. Just picked a copy up from library. In my journey to find out why or what caused me to be ill. I was in to healthy eating making juices sprouting my own seeds,eating foods that I thought were doing me good. Watching my weight and so on. So was horrified to find ]alfalfa sprouts [/color]were mentioned as they contain something called L-canavanine which is highly concentrated and increases inflammation in autoimmune patients. Why did my rheumy not mention this to me? As it is well documented FLARE UPS OF LUPUS DISEASE HAVE BEEN ASSOCIATED WITH INCREASES CONSUMPTION OF ALFALFA SPROUTS. Could I have caused my own illness? as I WAS eating these sprouts every day.
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SLE. PH. Systemic sclerosis. ILD. Dermamyositis. Raynaulds. underactive thyroid
 

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Hi Dixy :)

I don't know much about this but I don't think you can "cause" the illness through that, only that it will make things worse if you do have lupus. It is pretty well-known but I've never heard a rheumy mention it, unless you actually told him that you ate them - I don't think that it would occur to him.

I think the main thing is that you are no longer eating them and should therefore not be adding to any inflammation that you may already have.

Katharine
 

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This issue with alfalfa sprouts seems to be more subjective. I don't eat them often, but will add them to a salad bar from time to time. [2 to 3 times in a year] I found that once in a while exposure does not have any effect on me. So, if you improve and do NOT eat them, then you have your answer. If, like me, you don't notice a difference, it doesn't have much effect on you. You can make sprouts from broccoli, mung beans, radish, sunflowers to name a few, which give you the same munchy effect in a salad, and are safe.
Sally
 

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earthling
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dixy;543718 said:
My Rheumy, at times Ive asked about diet and stuff I could do to help myself. (Thanks 2 whoever mentioned the Lupus book Dr Wallace )in one of the posts. Just picked a copy up from library. In my journey to find out why or what caused me to be ill. I was in to healthy eating making juices sprouting my own seeds,eating foods that I thought were doing me good. Watching my weight and so on. So was horrified to find ]alfalfa sprouts [/color]were mentioned as they contain something called L-canavanine which is highly concentrated and increases inflammation in autoimmune patients. Why did my rheumy not mention this to me? As it is well documented FLARE UPS OF LUPUS DISEASE HAVE BEEN ASSOCIATED WITH INCREASES CONSUMPTION OF ALFALFA SPROUTS. Could I have caused my own illness? as I WAS eating these sprouts every day.
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SLE. PH. Systemic sclerosis. ILD. Dermamyositis. Raynaulds. underactive thyroid
Dixy, I am not surprised! My rheumy and kidney doctor have really helped with prognosis and medication, but I've learned not to ask anything about diet or alternative medicine - they offer no dietary advice - I can "eat whatever I want" and they don't believe in any alternative approaches. In seeing lupus doctors for the past 3+ years, no one has said anything about nightshade vegetables causing inflammation. I've had to do a lot of research on my own.

I remember when I was hospitalized for kidney disease I was surprised that no doctors offered any advice as to what to eat and what not to eat for kidney disease - one of the nurses told me that med students are offered a nutrition course as an elective - and most of them don't take it.
 

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Thanks 4 u replys

so its ok to sprout other seeds then. Broccolli seeds r hard to find or very expensive.

I took my daughter to a dietition at the hospital she was useless told us to avoid dairy. Then the diet sheet she gave us U can guess it mentioned Yoghurt:eek:DAIRY.doh

I had researched more think I knew more than her. Needless to say we didnt go back what a waste of time.

dixy
 

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(This a general reflection about nutrition and diet in lupus not directed at anybody personally)

Maybe I am being dim, but how about simply eating the vegetable as part of a well balanced nutritious diet packed full of fresh fruit and veg but without animal fats and beware the trans fatty/hydrogenated fats, cut out processed sugars and all junk food but with a dash of Omega 3's; all of these measures are believed to help reduce inflammation.

The body can only use so much nutrition at any given time. My personal experience is that it is much easier to buy a supplement of some sort than to deprive myself of food I know I should not be eating or even make myself take some exercise. :worried:

Keep a journal of what you eat to see if there are any particular foods that make you feel worse or bring on a flare, or even cut out certain foodstuffs for several weeks to see if you do better without them If you do find like some people that you react badly to dairy you might need to consider if you risk Vitamin D deficiency. If you go vegan with no animal products at all you might need to think about Vitamin B.

There are have been one or two experiments with RA and there is anecdotal experience in lupus, from doctors too, that certain foodstuffs do trigger flares in some people. Dr Hughes recounts a patient who got the impression that the cheese she loved might not be doing her any good so she stopped eating it for a couple of months, then ( bravely) had a cheese binge and duly had a major flare.

I would find an medically qualified reputable alternative or holistic practitioner who is willing to work with your rheumatologist on the best ways of helping you with all aspects of disease. The lupus specialists are accountable, liable and caring. They obviously are not going to direct their patients towards unproven uncertain remedies and only too often they have to pick up the pieces of damage caused by ignorant alternative practitioners.

I thoroughly recommend a book called New Hope for People with Lupus by Theresa Foy DiGeronimo. It is available through Amazon and if you order anything from Amazon through this site a certain amount of revenue is raised towards the upkeep of this site. The site founder Joanne has contributed to the book. There is a lot about Mind & Body and also excellent advice about choosing alternative practitioners. The addresses and references are to USA organisations so people in the UK have to do their homework to find the UK equivalent bodies.

By the way, I also think this is a much better lupus primer than Dr Wallace's very dense and detailed "The Lupus Book " which is pretty heavy going and offputting in appearance to my simple mind, however excellent it is and useful when you want to go into great detail about a particular aspect.
The New Hope book is indeed a "Friendly, Authoratitive Guide" to "Living with Lupus and Creating a Healthier Future". It was published in 2002 so probably it will not mention the most recent therapies and maybe there are new understandings about some of the complementary therapies.

Be Well and Take Care
Clare

http://www.uklupus.co.uk/ for amazon books and gifts, and see also articles on complementaries and supplements There are also a lot of discussions of these topics on The Complementary Therapies section of the forum.

:)
 

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The Other Illinois Tammy
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Hi Dixy,
I do not believe it to be the cause of your illness as I have never had one of those spout things lol. Guess what I have lupus too. I thought you had something at first but no. Ok, now I had my fun with you today.

If you have been eating them everyday then the worse thing is that you immflammation just did not have a chance to go down any is what I would think. If you cut back or stop eating them all together than there is a chance you might feel a little better but that is not the only cause of you immflammation I am sure.

As for your doctor he was not aware that you had been eating spouts everyday I am sure. It is sometimes hard for doctors when we put them on the spot to remember everything that you can't eat for every disease. He should of given you some ideas where to look or given you something to at least read.

I do hope that you start feeling better with those spouts out of your system lol.
 

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I bet most people in the UK have never heard of alfalfa sprouts. It's a perfect example of something being pushed as health food without warnings. And highlights the importance of acquiring knowledge about what's reckoned good and not so good for people with lupus.
I am quite sure too that alafalfa doesn't cause lupus. If consuming large quantities in anyway triggered lupus, it would have been something or another sooner or later, only a slight part of whatever factors did cause it to surface including some things that can't be avoided, like hormonal influences

:)
Clare
 

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Thanks Clare

So much for healthy eating. Like "You Are What You Eat eat"Dr Gillian McKeith. Eat all the good stuff and you wont get sick.
Feel cheated at times dont smoke never have and I have lung and heart problems. Well thats my Rant over

dixy
 
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