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Discussion Starter · #1 ·
I am taking Plaquenil and prednisone.. I also take beat blockers and Keppra..
I was on 10mg of steroids and I have gone down to 7.5mg a day in the morning.. on day four now.. he told me to try lowering it when I felt ready and so I did.. I waited until the Keppra was in my system for a little while before I started to lower that dose. I am feeling ok.. I read that Lupus can cause seizures.. how does one know for sure it is from Lupus and if it is, do you just take antiseizure meds or is there something else offered as well? Sorry for all the ?'s ...:hehe:
 

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Not really sure what your asking here, I would hope that ones neuro Dr and rheumy would work that one out for us ie, weather its the sle that causes it, in my case neuro and rheumy both agree its the sle thats causing my Epilepsy like you i take meds for the epilepsy,
also lots of others to go with it for my sle and BP ...... hope you have a good neuro!!


take care Lin x
 

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Hi Jenna,

Most of us who have seizures related to CNS involvement have found that anti-seizure meds don't do the trick, getting the Lupus controlled is what helps.

If indicated then Immunosuppressants are usually the drug of choice. Of course when they are at their worst Pred is used to help calm down the inflammation, but as a long term treatment Immuno's work best.

Some people have another scenario whereby they have brain lesions from past flares of Lupus or APS which are causing seizures. Often their Lupus or APS is under good control but the damage done means they have to have an anti-convulsant to stop seizures. These are used in a similar way in other patients in the 'normal' population who have a brain insult from any number of causes.

Hopefully things will settle down for you. You haven't been on Plaquenil very long either I don't think? So there's no reason to think that it alone won't be enough to control your Lupus. It just takes time unfortunately :( but you always have Pred as a backup if you need it until the Plaq does kick in.

I'm glad your episodes seem a bit better controlled now :thumbs: long may it continue.

love
Lily
 

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Discussion Starter · #4 ·
Right.. I have only been on Plaquenil for a little while now.. and the prednisone.. the rheumie put me on this once I started having the black outs and could no longer drive.. and so it did help big time.. he started to take me off the steroids and all the symptoms came right back so he put me back up on the steroids again.. in the mean time my family doc sent me to see a neurologist.. I did give this neurologist all my rhuemie's info.. and I called and left a msg with the rheumie that I was taking Keppra for Complex Partial Seizures.. I have not heard from either of them but I do have appointments in October with them both. I guess I will find out then.. I am still having seizures BUT not nearly as much as I was prior to all my meds so something or all are working..
 

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Jenna I hope that the rheumy and neuro can work together to get your symptoms under control. Not long till your appt now. Let us know how you get on.

Deb x
 

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Discussion Starter · #7 ·
I was in the er for over 6 hours.. had another seizure.. this time my right arm was convulsing (sp?) and i feel completely bruised!! UGH the neurologist will see me tomorrow and I will also make sure that the rheumie is involved.. right now i am off to lala land ` I am exhausted!
 

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(((Jenna)))
I am sending you strengthening hugs your way.:hug::hug:

I will be thinking of you tomorrow at your appointment.

Get plenty of rest in the mean time.

:grouphug2:
Lyn
 
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