Hi Everyone,
I have been suffering from SLE and Sjogren's symptoms for a couple years now and was finally referred to a Rheumy for testing. Before even getting the labs back she said she thought I had SLE and SS. She put me on 400mg of Plaquenil once a day and said she would see me in three months.
Now, about five days after starting the Plaquenil I broke out in this bumpy itchy rash all over my torso, arms and up to my scalp. I called the call nurse and the doc told me I was allergic to it and to stop taking it. Then, the nurse said the doctor had no further recommendations and would see me at my three month appt.
WHAT???? I have been SUFFERING from intense joint pain in my knees, hips and hands every single day (except for a few weeks while on Prednisolone) for more than four months now. The thought of going another three months with no relief is depressing. I have four small children, a part time job and I am a full time student. I can't keep living like this.
What else can I take in place of Plaquenil? Should I ask for something specific? Should I change doctors because this is a bad sign?
I am so glad I found this web site. It is so nice to know I am not crazy and that all these symptoms are not just in my head!
Andrea
I have been suffering from SLE and Sjogren's symptoms for a couple years now and was finally referred to a Rheumy for testing. Before even getting the labs back she said she thought I had SLE and SS. She put me on 400mg of Plaquenil once a day and said she would see me in three months.
Now, about five days after starting the Plaquenil I broke out in this bumpy itchy rash all over my torso, arms and up to my scalp. I called the call nurse and the doc told me I was allergic to it and to stop taking it. Then, the nurse said the doctor had no further recommendations and would see me at my three month appt.
WHAT???? I have been SUFFERING from intense joint pain in my knees, hips and hands every single day (except for a few weeks while on Prednisolone) for more than four months now. The thought of going another three months with no relief is depressing. I have four small children, a part time job and I am a full time student. I can't keep living like this.
What else can I take in place of Plaquenil? Should I ask for something specific? Should I change doctors because this is a bad sign?
I am so glad I found this web site. It is so nice to know I am not crazy and that all these symptoms are not just in my head!
Andrea