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377 Posts
Hi all,
I wanted to report that I do not have to stop taking Enbrel which is what I feared. Apparently I do have a very low titer of dsdna but nothing to worry about and that it is now apparently very common for those on Enbrel. I will be getting a copy of all of my bloodwork and then making a list of questions to ask at my next appt. What I do need to do is to see a Cardiologist and have my heart checked out.
The Prednisone burst last week was wonderful, while I was on it, and I was able to accomplish some errands that needed to be done. I did pace myself and didn't do near as much as I might have. Today the edema is back already and will be staying around until we see what a cardiologist has to say. Other than edema are there other symptoms that those of you with heart involvement have dealt with over the years?
I am still recovering from the Prednisone withdrawal that started on Saturday but each day is better than the last.
hugs,
Karen
I wanted to report that I do not have to stop taking Enbrel which is what I feared. Apparently I do have a very low titer of dsdna but nothing to worry about and that it is now apparently very common for those on Enbrel. I will be getting a copy of all of my bloodwork and then making a list of questions to ask at my next appt. What I do need to do is to see a Cardiologist and have my heart checked out.
The Prednisone burst last week was wonderful, while I was on it, and I was able to accomplish some errands that needed to be done. I did pace myself and didn't do near as much as I might have. Today the edema is back already and will be staying around until we see what a cardiologist has to say. Other than edema are there other symptoms that those of you with heart involvement have dealt with over the years?
I am still recovering from the Prednisone withdrawal that started on Saturday but each day is better than the last.
hugs,
Karen