Welcome to the forum bellamarie !
I do think you should see a rheumatologist since you have been feeling unwell for some time and that is a very high ANA which along with symptoms is unlikely to be found in the other conditions that can have a raised ANA titre.
I wouldn't be worried though - simply concerned. There's not much point worrying until you know what there is to worry about Obviously nobody wants to have a diagnosis of a chronic disease but it might not be so bad and might respond well to treatment. It could explain previous poor health and mean you will be feeling better than you have been.
Lupus affects everybody slightly differently and to different degreees of severity.
I find it rather odd that results like this are given over the phone apparently without an opportunity to discuss with the GP but maybe there is some good reason for it. However, for most of us the GP plays an important role in our lupus care as the first port of call when unwell so they need to be very aware of what's going on in all respects. Perhaps you can make an appointment to discuss and find out who you should be referred to. Try to get a rheumatologist who specialises in lupus - not all of them do.
Meanwhile I suggest you read the Criteria lists at the very top of this section to get an idea of the symptoms that feature most often in SLE. See what you can identify with. Also read the articles about diagnosis and testing on the information section of the site and also the LFA site.
www.lupus.org
Make a list of recent symptoms and your health history, leaving nothing out, as well as a note of the health of close blood relatives. Also get copies of these tests results for your files. There should be a CBC and metabolic panel. If a urine test wasn't done, request one.
We will help you all we can so just ask if you have more questions. There's a wealth of information and support here.
Bye for now
Clare
