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elisabethm
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does anyone have constant anemea every blood test done comes back the same doc phoned hematologist about it she said do more blood done that back the same so he phoned me today with another load of iron tablets if they dont work wants to do camera both ends only had it done a couple of months ago he said somthing about gluton free diet anybody onit also he said insted of cameras they can do a lot of ct scans told him i would rather go for a scan than the cameras feed up with it i am so tierd help :(
 

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It does seem a bit odd to leap to cameras if more iron tabs don't work - however that is an important thing to rule out if blood testing alone can't account for your anemia. Bleeding from stomach ulcers or ulcers anywhere in the digestive tract can cause anemia.

However, in an SLE patient, anemia of chronic disease is a distinct possibility and often times blood tests alone can help distinguish between iron deficiency anemia versus anemia of chronic disease (from SLE for example).

Here's a quote from Wikipedia on the topic:
While no single test is always reliable to distinguish the two causes of disease, there are sometimes some suggestive data:
  • In anemia of chronic disease without iron deficiency, ferritin levels should be normal or high, reflecting the fact that iron is stored within cells, and ferritin is being produced as an acute phase reactant but the cells are not releasing their iron. In iron deficiency anemia ferritin should be low.
  • TIBC should be high in genuine iron deficiency, reflecting efforts by the body to produce more transferrin and bind up as much iron as possible; TIBC should be low or normal in anemia of chronic disease.
There are other websites that are less technical, but this one summarized how blood tests can help point towards simple iron deficiency anemia or anemia of chronic disease. If iron tabs do not work then obviously that is another indicator! Be sure to take your iron tabs with food, and preferably with a vitamin C source but little calcium. This is because vitamin C helps the body absorb the iron while calcium competes with iron for absorption.

Good luck - but if you have to do the camera thing it's not too bad ;)
 

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smile xxx hugs to all xxx
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i suffer really bad with anaemia since ive had lupus the docters have done the camras both ends on me its not as bad as it sounds am sure you would rather get to the souce of the problem?
ive also had ct scan but nothing shows up

so now they have sent for some blood test that will show if i have a naturaly low h.b level.

iam on iron tablets and i also have a weekley injection called aranasp but thats also because i have kindney faulire and you get even more anaemic.

i wounldt worry to much try eating things high in iron see if this helps push it up
hope you feel well soon ((hugs)))

roxie xx;)
 

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I had the same problem with chronic anemia. What they finaly found out was I had trouble with my B-12 my body doesn't store it. And taking tablets my body will not take in the B-12 so I have to get shots to help .

I can't think clear right now but maybe someone can help more to explain what I'm talking about. I think it is called percouis(spelling may be off) anemia???

So if they have not checked your B-12 have them do that first a lot easier to do that test than what they want to do .

Hope this helps
 

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My wife has shown signs of Anemia for close to 20 years now with Lupus.
Her Cardiologist was more concerned with this then any other Doctor she had at the time and had alot of tests ran.

After several tests and exams she was told she had Chronic Desease Anemia.
Her levels seem to change as a indicator of just how the Lupus is doing.

She has also had trouble with a couple of other items causing Anemia so she is monitored close for sudden changes for the worse.

When she had a Toxic reaction to medication the Blood Level Changes and fever she had showed she had a big problem that required imediate attention.
She was put in the Hospital for several days and given four units of blood to get her levels back to normal. She was closely monitored as medications were removed and readded till the found the one that was causing the trouble.
Lucky for us at the time she had recently started a couple of new ones so they tried the two of them first and found that as soon as one was given her temp would spike.
After it was removed her blood levels stabilyzed for awhile.

When she had Internal Bleeding a blood test showed she had Anemia very bad. A exam and test that only took a minute showed that she had Blood in her digestive system at very high levels.
She was then admitted until they could get her stabilyzed and she was scheduled to be scoped.
When she was taken down we went with her and went to the waiting room to settle in and wait. We were in for a very short amount of time and the Doctor came in. We figured he was there to tell us he was going to start and what would be done.
He was there to tell us he was done and what he found.
 

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HI,

I have recently been told that I am not anaemic but have a B12 deficiency!!!

A seperate blood test was done for B12. I am not being treated yet and assume my Immunologist will do something when I see him in March - not sure what though.

rwb200 - I hope your wife is doing okay at present!

elisabethm - good luck with your camera examiations!

Love Lesley
 

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hello iam anaemic iam on 3 iron tabs daily and i have been off on iron jabs am of the jabs at the moment but i have been told i will be going back on them ouch so hang in there honeyrose
 

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elisabethm
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Discussion Starter · #8 ·
elisabethm

thank you all for your replies to RWB200 hope your wife is feeling better soon does any body know anything about gluten with lupus as that is the next results i am waiting for i also have the flu not feeling to good cant even go and see T Jay dont want to give him the flu feeling sorry for myself tonight :sad:
 

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I've replied about coeliac disease in your other post (about gluten etc). The camera down your throat is actually an important test for coeliac disease, and if you are offered this, then I'd suggest you take it. I'd also suggest having this one done before they consider doing one from the other end. Its not a big deal. They give you a sedative. I have had several of these (endoscopies) and almost as soon as the tube is in my mouth I'm away with the fairies and don't notice anything until its all over again. Just DON'T change your diet until after all these investigations are over - once you go on a gluten free diet, then everything returns to normal (blood tests and the changes in the bit below your stomach that they look at with the camera). They need to see the changes to diagnose. If you do have coeliac disease, then this will totally explain the anaemia, as well as B12 deficiency, folate deficiency and all sorts of other malabsorption problems. If the tests do show coeliac disease, then you will be given advice on the gluten free diet, which isn't as bad as it sounds and quite easy to get used to.

On a slightly different note, I just really can't believe that doctors don't routinely do the blood screening tests for coeliac disease when they find ongoing anaemia, or B12 or folate deficiencies. Medical knowledge about coeliac disease has improved dramatically over the last 10 years and yet there are still GPs and specialists who are really totally in the dark about this.
 

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I have chronic anemia and have had a endoscopy. I am seeing my gastro today so we shalle see:rolleyes:

I think they throw it in as a "lupus thing"


I will let you know what I learn.


Hugs,
Becca
 

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I've had anemia just once so far....and i have no desire to have it again. Went for a blood test the other day and it seems to have gone for now. I really do sympathise with you
 
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