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Discussion Starter · #1 ·
Hi all
A friend of mine has just been diagnosed with Angular Lupus. I have never heard of this. She has been in hospital in this country and they couldn't find out what was wrong with her so she flew to India nearly 2 weeks ago, but was ill on the journey and an ambulance was waiting for her at the airport. She is now in a Lupus hospital somewhere in India.
A couple of days ago her eyesight went and is only gradually coming back now. They have put her on 60mg Pred a day and she is still in hospital.
Just wondered if any of you had heard of Angular Lupus
Hope you are all keeping as well as can be
Love
Meryl
 

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Discussion Starter · #5 ·
Thanks for your replies Katharine, Clare and Julsie
You are right Julsie it is annular sub acute cutaneous lupus, It got interpreted wrong over the telephone, also the language barrier is proving to be a bit of a nightmare as when we speak to her husband on the telephone, he is absolutely devastated and he is getting his words mixed up. It must be really difficult for them both as they are in separate countries because they couldn't afford for them both to go back.
Like you Clare I just hope she is getting the right treatment over in India, all I know is that she is on 60mg Pred a day and in her husbands words " a chemotherapy drug beginning with C that she has IV once every two weeks, she has had one dose and has to have another 4" so it will be at least 2 months that she has to stay over there, the Doctors want her to finish this treatment there and then if she is well enough she will be able to come back home.
My husband and I are trying to help as much as we can from here, but like I said the language barrier is proving difficult. We have told her husband to ring us as often as he likes and we will try and answer his questions.
Anyway thanks for your replies

Meryl
 
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