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hi all well as most of u know i live in northern ireland and i went over to the london lupus clinic to see Dr Kaul and he diagnosed me wiht mild lupus
and started me on 200mg of plaq a day
so today i got an appointment here with a dr aubery bell
he was very nice but did not agree with the diagnoses
he feels i have a post viral problem and that it could last for many years
so now i am left confused again
he said keep taking the plaq as i have only been on it about 8 weeks and to come back and see him again in a few month and see if i feel any better
most of the bloods test are normal but i have a raised ana of 80 so not that much
i also have heaps of the symptoms incuuding a bit of a rash which has got better with the meds i think
he also recomended onacor fish iols 1gram a day as they have completed research saying it has benefit effects on lupus patients and it wont do me any harm even if i dont have it
so her i am again thinking and feeling like i am not well but this dr saying virus
so will stick to the meds and take the vitamins and the fish oils and see if that works
i said to him i was normaly healthy person with a pretty good diet who does not smoke and only drinks about 3-6u units of alcohol a week
and now i am a person who is in constant pain who feels like i have the flu and hangover symptoms all the time wqith joint pain mouth unlser swollen hands very sore chest pain when i breath and had a c.y scan which showed up inlarged lymph nodes and also sickness and swollen glands the list goes on
he just said ok see u in 3 months
alex
and started me on 200mg of plaq a day
so today i got an appointment here with a dr aubery bell
he was very nice but did not agree with the diagnoses
he feels i have a post viral problem and that it could last for many years
so now i am left confused again
he said keep taking the plaq as i have only been on it about 8 weeks and to come back and see him again in a few month and see if i feel any better
most of the bloods test are normal but i have a raised ana of 80 so not that much
i also have heaps of the symptoms incuuding a bit of a rash which has got better with the meds i think
he also recomended onacor fish iols 1gram a day as they have completed research saying it has benefit effects on lupus patients and it wont do me any harm even if i dont have it
so her i am again thinking and feeling like i am not well but this dr saying virus
so will stick to the meds and take the vitamins and the fish oils and see if that works
i said to him i was normaly healthy person with a pretty good diet who does not smoke and only drinks about 3-6u units of alcohol a week
and now i am a person who is in constant pain who feels like i have the flu and hangover symptoms all the time wqith joint pain mouth unlser swollen hands very sore chest pain when i breath and had a c.y scan which showed up inlarged lymph nodes and also sickness and swollen glands the list goes on
he just said ok see u in 3 months
alex