Hi Katharine,Katharine;537923 said:Hello and welcome
I hope you will find the site useful for support and advice. There are a great many wonderful people here all willing to help in whatever way they can.
I presume that although you have no "formal" diagnosis, you are still being treated as you would be for lupus or another connective tissue disease?
bye for now,
No, they're threating me for Fibro and that's about it. I have no doubts that I do have Fibro but there are other things too and the medications for Fibro, while they help some, just don't cover it all. They don't treat the inflammation I have. Right now I'm on Pred for that. But, like last time I was on it, when I start the step down the inflammation just comes right back and there I am again.
Thank you for your welcome and I know I'll learn a lot here. I have questions about SED rates and CRP values. For lupus patients in fare...what do those numbers usually run? My SED rate is usually around 70 and my CRP is off the chart almost at 12.81..it keeps rising. These aren't common for Fibro because there is no inflammation associated with Fibro.
Take good care,