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Hi Ashli,

I have experienced all of what you describe but because I haven't been diagnosed yet either, I can't help you understand what's going on, can just let you know I understand.

The problem with my hands cleared up after a while. It was really scary when it was happening though. It may be a form of movement disorder (dystonia). I eventually developed other forms of dystonia after the problem with my hands cleared up. The other forms of dystonia are gradually improving as well now. I still need to sleep 10 hours a night most of the time though.

Take deep breaths, tell yourself "this too shall pass" but discuss with your rheumatologist and see a neurologist as soon as possible.

Best wishes,

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