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Discussion Starter #1
the old wake up on the floor wondering what the heck happened.

it's bizzare, all these years and I still don't know what has happened, takes me quite a while to figure it out.

oh well, same old same old .....

raglet
 

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Oh dear Raglet :( what a pain!!

Wouldn't it be nice if you just had a bit of a break for a while.

I hope that's the last in a long time to come and I hope today can be an easy, relaxing one.

Katharine
 

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I have had 3 seizures but lucky for me they were while i was in the hospital. Before each seizure i get a painful headache though. The last two times i had been in the hospital the same day for the migrane and they send me home just to end up back. Also, I usually fall asleep (to help headache) and dont wake up for about 2 weeks. Usually because they will then put me in a medically induced coma. You have these while at home? You have someone there with you right? I usually am not aware of what happened when waking up either. Each time i feel like another little peice of my brain is gone. The first time was really bad. I had to see a speach theripist and relearn basic math and reading. I still have some trouble reading, i tend to get lost and my eyes will seem like their moving around too fast to keep concentration on what i'm trying to read. My left side of my body seemed to be a little slower also. Things have gotten a lot better though now. I dont seem to have any problems except the reading.
 

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Hi Raglet,

I hope this is just a single event for you :hugbetter:. Get some rest and let your animals shower you with affection.

Take care,
Lazylegs
 

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Raglet, that's awful. How scary it must be for you. How lucky that you haven't hurt yourself during one of these episodes. What do the doctors say? When my sister with RA started having seizures they put her on a medication to control it. Can't they do that for you?
 

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Hey Raglet,

Yep, I find those after seizure moments of bewilderment quite odd too! You'd think after the first couple of times one finds themselves on the floor with a ****** tongue they'd kind of catch on and recognize they've had a seizure pretty fast, but nope it really doesn't work like that! I still takes me a while too to figure out what happened, but then again one's brain is kind of tired after a seizure so that might contribute to any delays in realising what happened.

Glad you didn't break any bones with your fall to the ground; sorry to hear about the seizure though...

Zoi
 

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Just to clarify; where the row of ******* has appeared on the post above, I just meant blood-y tongue...! Seems I got censored!! :lol:

Zoi
 

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Discussion Starter #9
I have epilepsy rather than seizures related to lupus. I have had seizures since babyhood, and have of course been on medication for them ever since (way back then I was on phenobarb). One of my earliest memorys is being on my fathers shoulders getting down my anticonvulsants from the high cupboard they were kept in. So my epilepsy predates my lupus and is unrelated to it, but of course when my brain is inflammed then my seizures get worse.

Honestly I don't really think that it is the venlafaxine - I have gone of it often before and it has never happened. I do have occaisional seizures so I think it was just one of those things. My neuro has referred me for another eeg so I should be having that in the next couple of months. At least these days they don't stick the electrodes on with plasticine like they did when I was a baby.

oh well, I am doing ok, just pretty tired really - I am always amazed how fast my mouth heals after a good chomping

cheers

raglet
 

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(((( Raglet )))) It's time for you to have a long, happy break from illness and symptoms and all the wretched stuff that goes along with it. Glad you didn't suffer any bad effects (other than a sore mouth). And I'm glad you're getting thoroughly checked out soon.

Hugs,
Sunny
 
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