The Lupus Forum banner
1 - 7 of 7 Posts

·
Registered
Joined
·
60 Posts
Discussion Starter · #1 ·
Hi Folks -

Im going for an anticoag - cant spell the rest blood test tomorrow - can anyone tell me about this?

What does it do - what should i expect - how long do results take - what are we looking for etc?

Thanks as always - Kiara
 

·
Registered
Joined
·
3,854 Posts
do you mean an inr, or PTT, DRVVT etc ? They are just very quick blood tests, so they shouldn't take very long.

But maybe you are meaning something else ????

Oh, maybe you mean the lupus anticoagulant test - that is also a very fast blood test.

Why are you having the tests - maybe that would help us work out what it is

cheers

raglet
 

·
Registered
Joined
·
60 Posts
Discussion Starter · #3 ·
Hi - not sure what they are looking for although was told they were investigating my suggestion of Lupus? I think it must be lupus anticoagulant - yes. Is it related to my low white blood count?
 

·
Registered
Joined
·
14,661 Posts
Hello Kiara
It's good that they are following up your suggestion of lupus. This is certainly worthwhile exploring and I have read numerous accounts of people whose low white cell count was the first sign of lupus and who were sent for oncological investigation because of it. I have no idea how often a low white blood count is accompanied by abnormalities in the "lupus anticoagulant" test

The tests for the presence of " lupus anticoagulant " are the clotting tests mentioned by Raglet. They can show the presence of antibodies called antiphospholipids.These antibodies were first identified in people with lupus but they can be present in people without lupus. The term anticoagulant is misleading because although in the test tube clotting times are slower than normal seeming to indicate a risk of bleeding, in human bodies they can indicate a tendency to clot formation.
The link in the lupus context between the presence of anti phospholipid antibodies and low white blood cell counts is that they are both criteria for a lupus diagnosis so long as there are other signs and symptoms of lupus.
See the ACR criteria list.

The presence of these antibodies does not necessarily mean there will be a clotting episode. The statistic usually given is that one third of people with lupus have these antibodies but only one third of those will ever suffer any problems from them. The lupus anti coagulant testing should be accompanied by tests for anticardiolipins, another sort of antiphospholipid antibody. Either can be abnormal at different times. They can come and go as part of the normal workings of the immune system. They are not always autoimmune either: levels can be abnormal due to infections for example such as Lyme disease or HIV/AIDS.
A false positive syphilis test can be another indication.

There are additional tests to show if the antibodies are autoimmune, or if other sorts of clotting abnormalities or another disease is causing them.

Bye for now :)
Clare
 

·
Registered
Joined
·
60 Posts
Discussion Starter · #5 ·
Thanks for all this information - i will ask today what tests im having and see if we can make more sense of what they are looking for - speak soon Kiara
 

·
Registered
Joined
·
14,661 Posts
It's an excellent idea to find out exactly what tests are being done and make a note to which you add the results as they come through. This is one way of 'taking charge', which dispels fear and increases a sense of control and it's the first step to being a well informed patient whatever the problem turns out to be

:)
Clare
 

·
Registered
Joined
·
60 Posts
Discussion Starter · #7 ·
Hi Clare

I got the second nurse to write it down for me - this is what she put

Lupus anticoaguant screening, auto immune profile component C3 and C4.

They took 4 tubes of blood so i dont know whether one of them requires two? Results Monday afternoon.

I made them do a smear as well because its overdue and while i was waiting i took my BP on their special machine which was Sys- 104 and Dia - 66 Pulse 92. Think this is fine but didnt ask.

Back on the waiting game now.
 
1 - 7 of 7 Posts
Top