I have read a lot from those suffering with Lupus, and some friends and family that are just starting to learn about the disease. I would really like the opportunity to talk with someone who can maybe help in terms of how to explain things to my husband - who is trying to be supportive, but he does get resentful from time to time about the time I spend with my mom.
My mom is only 62 and she's been living in a skilled nursing facility for about 7 years now....and sometimes it kills me inside to drive away when she's sitting in the door waving at me. After all she's been through, in so many ways, she's very much like a child. And sometimes I sit in the parking lot and cry. And it's very hard for me to say no to her about anything - even if it seems unreasonable.
My mom has always been the strongest person I know, and still is. She refuses to give in to this, and the doctors often tell me that she's too fiesty to let it get her. The last couple of trips to ICU, that's what they've told me. I know there is going to be a time when her fiestiness is not enough and I will be lost.
Mom's birthday (hopefully this works)
View attachment 192
My mom is only 62 and she's been living in a skilled nursing facility for about 7 years now....and sometimes it kills me inside to drive away when she's sitting in the door waving at me. After all she's been through, in so many ways, she's very much like a child. And sometimes I sit in the parking lot and cry. And it's very hard for me to say no to her about anything - even if it seems unreasonable.
My mom has always been the strongest person I know, and still is. She refuses to give in to this, and the doctors often tell me that she's too fiesty to let it get her. The last couple of trips to ICU, that's what they've told me. I know there is going to be a time when her fiestiness is not enough and I will be lost.
Mom's birthday (hopefully this works)
View attachment 192
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