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Discussion Starter · #1 ·

:hello::hello::hello:Hi
Has anybody had Pubic Symphsis Dysfunction??

I have had pain down below now for 4 weeks. Was sent to the STD clinic,had swabs taken at the docs and was looked at to see if I had Warts!!All cos I said I felt like a knife was going through me down below.
Can u beleive that!!Im with my partner for 22yrs and only had one partner before him!aahhhhhhhh

Anyway,saw my own gp in the practice after the other gp there sent me for all these tests and when she pressed down on either side of my pubic bone I nearly hit the roof
She said I have inflammation of the cartigle that hold the pubic bone together. I have so much going on with me at the min---I had a Lumber Puncture last fri and had a Spinal Heachace from it (only up and dressed today) and going into hospital on Wed next for removal of Thyroid- have Cancer there so all must come out.

Any advise on how to deal with the pain i.e exercise etc would be great as she has put me on DF118's for the pain at the min.

Thanks,
Jo
 

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I'm sorry you are going through this. The only advice I can offer is to listen to your body. Don't do anymore than you can do. I don't have a thryroid and they just make sure they keep watching the levels to see if the meds need to be adjusted. I know it's hard but my sense of humor has helped me through alot of tough spots.

Keep Smiling (Try):wink2:
 

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Dear Jo

Im really sorry to hear how much you are going through. I was amazed when I read your post because I have been having really bad pain in my pubic bone area for the past couple of weeks also. I have had really bad lower back pain as well which has just started shooting down my leg so Im beginning to think it might be sciatica as the two can be related apparently. I already have sciatica on the right side so it looks like the left is joining in :sad:

I have an appointment tomorrow with my doctor so I might have a better idea then what is going on.

In the meantime your post prompted me to do a bit of searching and the VHI site recommends the following:

Put a pillow between your legs when sleeping
Keep your knees together when turning in bed
When standing, stand symmetrically, with your weight evenly balanced on both legs
Sit down when getting dressed, especially when putting on underwear, tights or trousers
An ice pack may ease inflammation in the pelvic area
Swimming may help relieve pressure on the joint
A lumbar pillow may be helpful when sitting
A pelvic support belt can help relieve pain
http://www.vhi.ie/hfiles/hf-618.jsp

It also says that regular abdominal and pelvic floor exercises to improve the stability of your pelvis and back are important. Of course all this advice is geared towards pregnant women and pregnancy being the cause of the SPD. I dont know how useful it is if Lupus inflammation is the cause. I imagine a course of steroids of NSAID's might help if thats the case?

I hope everything goes well next Wednesday for you. What a terrible run of bad health you are having :hugbetter:

Luv n stuff
Joan:rose:
 

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Jo,

I know what you're going through, and it is miserable! I have degeneration of the pubic symphysis, too. Joan gave excellent advise, and I have found exercise helpful. Joan is also correct that problems in one area of the pelvis can lead to issued elsewhere. I have issues with sacroiliac joint dysfunction, as well.

I find that my pain comes and goes. I can go several months at a time without issue, and then have it hit me with no warning. I hope things settle down for you, as well.

Terri
 

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Since my hysterectomy I have had a problem with it off and on. It always coincides with my sacroiliac issues. I tend to get out of alignment easily so have to do some simple exercises to help.

Good luck on Wednesday. Let us know how everything goes.

Take care,
Lazylegs
 

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Hi Jo

Well having had my gp visit he has confirmed sciatica as the cause of the pain and also feels that the Lupus is probably the underlying reason, especially when he heard of the underlying pubic bone pain. Bear in mind that he is on a steep learning curve with this disease as well...

We had a chat about what could help with the pain and the best we could come up with was increasing the Lyrica temporarily as this is designed to help nerve pain.

However having come away from the appointment and thought about it I think that a short course of steroids might help as well. Soooooo without permission I have embarked on this course of action :rolleyes: I am emailing him on Monday to tell him what Ive done and asking for his 'approval'. The reason behind the 'dramatics' is that I am away for three weeks holidays and cant get to see him for that period.

I am hoping that my self medicating wont cause difficulties for us and I will let you know what he says and, more importantly, if the pain eases over the next few days. My plan is to take 10mg pred for 5 days, then 5mg for 3 days, then 2.5mg for 3 days then zilch....

I will let you know how I fare...

Luv n stuff
Joan:rose:
 

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I think I should say that I have not taken the decision lightly to go back on prednisone. It took me three years to get off it and I had a lot of pain during the withdrawal process but right now I think it is the right decision for me.

Joan:rose:
 

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For years now I have suffered with pubic bone issues. I was told in my 7th month of pregnancy that the pubic bone was spreading.. they gave my a belly brace and walker.. the pain was too much to handle. After giving birth and getting back into my every day life I found the pain slowly going away. Not too long after I found that if I am on my feet all day I would have shooting pains and my legs would give way.. odd. So I went to the doc.. also I have to "snap" my adductors in order to feel comfort and have full motion. The doctor told me he had never heard of such a thing.. until I manipulated my adductors and he saw and heard the popping.. I have to do this about 15 times a day.. some days less.. Some days more and NO ONE can tell me why that is happening or what I should do. I almost told the Rheumy but for the sake of sounding crazy I did not.... I have tried different stretches ( I do Yoga and Pilates ) some helped a little and others made it worse. All I know is that its difficult living with it and its getting worse as time goes on. Let me know what you find out!
 

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Jeepers Jenna:sad:

Im sorry you are suffering so much. I cant even imagine the pain you must be going through considering this is new to me and I already feel like a wet rag trying to stand up and walk half-way straight:worried: Please do tell your Rheumy. You never know...he/she might have had some experience of it which can help.

Its a terrible pain alright. I dont know that I will find out anything about it but if it continues I will definitely persue it and let you know if I have any insights.

Much love and strength to you in your daily struggle. Its one pain that is hard to describe, let alone tell anyone about....

Joan:rose:
 

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Hi Jo

Just wondering how you are doing? Just to update you - the pred was the best thing I could have done. About 36 hours after starting the pred I could feel a huge difference in the pain levels from the sciatic nerve and the pubic bone area. There were even times when I hardly had a twinge!! I told my doctor about the self medicating and he okayed it so that was good..

I have stayed on the 10mg pred for six days and tomorrow I will start to taper so I will let you know how I am faring.

One of the main reasons for needing some relief is that since last Monday I have been minding my 9 month old grandson on my own while his Mam and Dad swanned off to Alton Towers along with my foster son :hehe: I was dreading it because I was afraid I wouldnt cope but this has been a really good week and I have managed everything perfectly! It was so worth it. Today I drove him into the nearest town and we did a little bit of shopping and even had some lunch - all on my OWN! I put him into the car seat, hauled the buggy in and out of the car, lifted and fetched him, carried shopping back to the car and then headed off for lunch! How great was that! I havent been able to do anything like that for a long time and it felt really good.

I just wanted to update you and let you know that the pred did the trick for me. The pain isnt totally gone but it isnt there constantly either. I hope your pain is resolving :hugbetter: Let us know how you are

Take care
Joan:rose:
 

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Discussion Starter · #11 ·
Update on Pubic Symphsis Dysfunction

:hello:
Hello everybody,

Just getting round now to posting a reply to all the members reply's. A HUGE THANK YOU to everybody who read my post or gave me some advice/tips on dealing with the issue. :grouphug2:

So the update is as follows:
Had my Thyroid op a week ago today and will know in about 10 days if he got all the cancer. While giving my medical details in relation to been booked in I mentioned that I now had a new symptom which was Lupus related?.

When I came out of the surgery the pain consultant had attached me to a Morphine Pump as I had been moved around alot during surgery this helped so much as I had no pain while I was stuck in the bed recovering from op.

The Pain Consultant who I see from my hip pain heard I was in hospital and paid me a visit in the ward. He explained that I have had the total amount of steriod and ansti injection this year for hip pain so at the moment contiue to take the DF118'S. I explained to him I was taking just 1 a dy and he told me that too little take 2 a dy with 2 paracatmol as they work very good with these tablets. Im worried about going up in pain meds and he also told me you can take up to 8 a dy and not overdose.

I asked to see the Pain Management Nurse before I left and she came to see me on Monday am, to no avail can she bring my appointment to see Pain Consultant forward (have appointment in Sept) but if there is a cancellation they will slot me in.

The only good thing about pain in my body at the moment is that I have no pain from the Thyroid Op....yipee on that basic's.

So I now have to go with my own body and take tabs 3 times a dy even if I feel like the pain isnt there--1 in am, 1 at lunch and 1 at bedtime to keep the pain at a manageable level until I see Pain Doc.

Hope you are enjoying your holiday Joandublin,thank you jennannshear,lazylegs, wifajax and fergusonstacey :love:
 

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Hi Jo

Lovely yo hear from you and Im glad you are over the operation and that things went well. The very best of luck for the results and lets hope they got all the cancer :hugbetter:

Thats great that your pain is more under control but I know the anxiety of worrying about increasing pain meds. It must be very reassuring though to find out that you are still on the lower end of the scale with dosage.Im on my last day of 2.5mg pred and while the pain has returned, so far it isnt as severe as it was. Lets see what the next few days bring, eh? :rolleyes:

Im just so pleased that something is helping to relieve your pain and I hope you get that cancellation to bring your pain appointment forward. I would be very interested to hear the outcome of your appointment as Im considering getting myself referred to a pain management specialist myself.

Here's to your good health and fingers and toes crossed for your thyroid op results :hugbetter:

Luv n stuff
Joan:rose:
 

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Hi Jo :)

It's good to hear you have the op over and done with, I have everything crossed that they got it all and everything will be ok :luck: :hug:

I'm glad you have some guidance on your pain meds. I have found it's incredibly hard to play catch up with pain meds and it took me a while to accept the constant need for them but my pain is more manageable now and that makes for a much better quality of life.

Take care and do let us know how you are going.

love
Lily
 

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Hi Jo, I am glad that your op went well and that your pain is under control. I hope you continue to have a good recovery. Let us know how you are doing.

Take care

Deb
 
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