[Jacquipeet]

I am interested to see if there are other women here that have endometriosis and lupus.I have had both for twenty plus years,and I am currently in a what seems like neverending flare,which I believe was brought on by the hysterectomy followed with nasty complications last year.Currently just on naproxyn,pain relief as needed and lots of tlc to myself!

 

[marybeth59]

Hi - Yes, I had endometriosis and fibroids and had a hysterctomy about four years ago. I think its another illness where your body fights itself. I was diagnosed with Lupus about the same time as I had my op. I will be interested to see how many other women have had similar experiences.
Mary Beth

 

[KarolH]

There is another post about Endo if you do a search for it and you will see that many of us have dealt with Endo, as I recall most of us got Endo before Lupus.

I had a hysterectomy 8 years ago, best thing they ever did. I had Endo so bad that I literally would end up in the hospital with surgery approximately 3 times a year. Finally my gyno said enough is enough.

I took all the drugs out there, including Lupron shots to try and keep it at bay and nothing worked. Endo was my enemy and attacked my insides constantly. I am so happy not to deal with that any longer.

Also, I had a major surgery 2 years ago and had MAJOR complications after wards. I think this may be a frequent thing for those of us who have auto immune issues.

 

[Jacquipeet]

Thanks for replying Karol.I am very new to this forum thing! Not sure of etiquette etc,if there is any,so I am taking small learning steps.I am glad you no longer have to deal with endo symptoms as well,was this a quick resolution for you after the hysterectomy?I have just about run out of options.Tried one lupron shot last month.but side effects were too bad to make it worthwhile continuing.I still have my right ovary although that now is playing up!

 

[KarolH]

My gyno told me the ovaries produce estrogen and estrogen is one of the culprits to Endo. Sadly I had a total hysterectomy and hence put right into a surgically induced menopause at 36 years old. Still better then 3 surgeries a year.

If you look at the blue tool bar at the top of the page you will see a Search option. Click on that and then you will see the word "Advanced". If you click on that it will take you to a page that you can type in the word Endometriosis and it will show you all posts that discuss this.

I know your new and navigating this board is not hard, just have to nosey your way around it to learn it.:lol::lol::lol: I am sorry the Lupron gave you side effects that were worse then the cause. Lupron is one heck of a strong drug and indeed has it's side effects to go along with it. I remember having crazy things happen with my body while on it, felt like a kid in menopause.

Again, welcome to the board and take your time to learn how to get around here. I hope you find this place as helpful as I have. This has become my home away from home in a sense. Also, join us in the chat room sometime. That option is at the top also near the Search button.:wink2:

 

[jrgator8815]

I had endo before being diagnosed with lupus. I thought the pain was bad before, but now it kind of feels like my insides are being wrung out like a washcloth. Midol, a hot cup of tea, and roasted espresso beans are my best friends during that time. I need to function too much to do anything heavier. Just another day in paradise!

 

[Chihiro]

Endo/Lupus

Hello!
I had the Endo before my lupus diagnosis. It started when I was 19 years old. I had internal bleeding as the warning shot when I first went in I couldn't walk, the ER doctor diagnosed me with acid reflux?!? My parents took me to a gynecological specialist and he felt 2 HUGE cysts and admitted me to the hospital immediately. I was there for about 9 days due to the internal bleeding from a rupturing ovarian cyst. One was the size of a softball and the other was the size of a grapefruit. They removed them and a year later they came back. They removed them again. 9 months later they took both ovaries, 10 mos after that they removed my uterus and cervix due to deterioration and scar tissue from where the endo would bleed. Menopause at 21. Sigh.... I too tried lupron and birth control pills. I truly believe it was one of many of the early signs of Lupus. I feel it is overlooked and then seen afterwards as an ah-ha thing and my heart goes out to anyone who has and is suffering with this.
Chihiro

 

[x_claire_x]

Hiya.. yep had endo for many years.. finally had hysterectomy, bowel resection, etc etc a year before diagnosed with MCTD.. ah aint life great!:lol: Have posted before on endo matters.. be in previous posts. Take care.
Claire X