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JellyJazz
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Hello,

I was just wandering if there are any others with a fast heart rate? Doctors have finally agreed its not anxiety (its happened when i've been shopping with Mum looking at types of jacket potatoes...not remotely exciting or scary)

I've had lots of tests and my heart rate is regular but just fast...it's been 184 lying down, it sits between 90 and 120 most days. Nobody seems that concerned about it. I've learnt not to be frightened but it is quite annoying and sometimes makes me feel tingly or spaced out/dizzy.

Is it a lupus thing or am i just being special?:rolleyes:
 

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I have a high pulse rate and feel my heart fluttering and racing at times. I had an EEG that was normal. I do have high blood pressure, though. It is controlled by medication. I do get chest pains now and then, that even wake me up at night. I guess it's just a lupus thing...The doc says not to worry.
 

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yeah my rheumy even wrote in the last letter to my gp "this lady always runs tachycardic" he doesnt seem too concerned..perhaps it is a lupus thing?
 

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Yes. I have the same, happen to me sometimes. I had it happen, the first time after my first dose of CellCept.

Sandy
 

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Hi Jelly,

Have you had your thyroid checked? When mine was out of control i had a very strong rapid heart beat. It also made me lightheaded and dizzy.

Take care,
Lazylegs
 

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Jen
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I have similar issues but nothing too serious, I do see a cardiologist one a year. My heart will skip/flutter, and beat very hard sometimes. No real resolution. I know when I was on verapamil it really helped slow my heart down (also helps with raynauds)..
 

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Hi Jelly

I have hyperthyroidism, an overactive thyroid and it causes me to have an exceptionally high pulse/heart rate at times. No matter how tired I am I can't still and bounce off the walls. Its also known as Graves Disease. My doc gives me Inderal (propenal) and it works wonders with very little side effects.

W
 

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I posted about this before. Like you mine is not associated with anxiety. I will be in bed at night watching TV and all of a sudden my heart will go up to 160+ beats a minute and remain that way for a while.

Also, if I lay on my left side I can feel my heart beat a regular beat and then all of a sudden it seems as if it stops for a couple of seconds and then beats rapidly 4 or 5 times and goes back to a normal beat.

Not only does this keep me awake but for me it is associated with shortness of breath sometimes too.

I did the 24 hour holter monitor and it was normal. Next month they are giving me a Event Monitor that I will keep for one month. Any time I feel this happen I have to plug it into my home phone line and it sends the abnormalities over to people who read it immediately.

Technology is amazing. I hope you get it sorted out. It is un-nerving.
 

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JellyJazz
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Discussion Starter #9
Thanks for the replies - so glad i'm not alone:)

I never knew technology was that advanced Karol!

I might bring it up at my next rheumy appointment...not til Feb next year-i've moved from every 6 weeks to every 3 months now :hehe:
 

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wow Karol that is so cool the was they check for abnormalities with the home phone pretty neat. i posted on this today my pulse or heart i dont know which one but i was laying down and out of no where it started beating it was very scary i was also light headed for a few seconds and my hands were alittle sweaty.
 

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Same issue here too! Tachycardia since I started with the other symptoms high ANA, pain,rash, cardiologist just keeps saying it's from systemic illness (lupus!) and watches and waits. I've had changes to my heart valves though in addition to the prolapse of two valves. Fortunately, my last echo showed improvements in the vegetations so I am thrilled that part looks better. My rate is worse when flaring up to 150-160 standing in bed can be 66-120. Only advice is watch your potassium and iron as those thing to worsen my heart problems. Have your homocysteine and B-12 levels checked too. Other than that you most likely will hear that your heart is fine structurally and not to worry about if it races or skips-easier said than done for me. As a former athlete I know my heart was never like this until the lupus presented my heartrate was always around 65 sitting wish for that rate in the future.
Let us know how you do, best,
Karen:):)
 

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smile xxx hugs to all xxx
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i had this for ages no one seem botherd then i blackout and was rushed in to a&e haveing something called svt heart rate of 226!!! am now on bisoprol heat tabets and its been mch better since back at a rate of 60-70.
 

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jellyjazz;525941 said:
Hello,

I was just wandering if there are any others with a fast heart rate? Doctors have finally agreed its not anxiety (its happened when i've been shopping with Mum looking at types of jacket potatoes...not remotely exciting or scary)

I've had lots of tests and my heart rate is regular but just fast...it's been 184 lying down, it sits between 90 and 120 most days. Nobody seems that concerned about it. I've learnt not to be frightened but it is quite annoying and sometimes makes me feel tingly or spaced out/dizzy.

Is it a lupus thing or am i just being special?:rolleyes:

I have had what my GP has described as a 'panic attack' out of the blue, ie. racing heart, feeling of light headedness, shortness of breath. At times it feels like I am detached from reality and not walking on the ground. Strange thing is every time it has happened I've been chillled out and like you, not anxious at all.
 

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i have a fast heart beat too. at rest my heart beat is usually around 98bpm and i'm fairly fit and a little underweight. also, my lung capacity is usually in the 80% range. the doctors don't seem too concerned with it. every once in a while my bp is a little high, but never high enough to be on medication. i think the highest was 136/96 and i was running my heartbeat at 110bpm. (i was at the er when this happened). the doctors couldnt find what was causing it. they did an echo-cardiogram and it came back normal, they found that my potassium levels were a little low and suggested that i wear a device to monitor my heart. (that never happened for some reason of which i dont know)...i still don't know what's causing it for me either
 

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Hi

I have a really fast heart rate too which is not anxiety or exercise related. It is worse when I am tired or cold, and I get chest pain as well sometimes. My echocardiagram showed left ventricular hypertrophy, but have been offered no treatment. This was after I collapsed 3 times in hospital at my outpatient appt and couldn't be brought round. I have been told not to be on my own, clean, walk too far or get stressed or do anything I dont want to do!!! I was told it was due to systemic disease which has turned out to be lupus and hughes syndrome.

I would mention to doctor and get it checked.

Take care

Deb
 

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I experience similar things. I have had an EKG and it was normal so I was not referred to the Cardiologist. All of the dr's who listen to my heart do not say anything. I was told by one dr that if I wanted to do a stress test I could but he was betting that it would be normal. I really did not have the money to do that if he did not think it was necessary. My heart beats so hard that you can see my chest move and my shirt moving with each beat. It is usually a fast rate (90-120) but it is not always. Sometimes it is in normal range but just beating so hard that I can watch it fully clothed. It happens when I lay down, and sometimes when I wake up after dozing lightly, not awakened by a dream or sound. I also get it during normal activities. I am not an anxious person. I think that "anxiety" is cop out when a doc cannot explain what it is.
 

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I've had the same problem, though it just started. I have had a really painful back ache, between my shoulder blades running to my chest- both sides. Every now and then, my heart rate will speed up and I can feel it pounding. Of course, when I breathe in it hurts some too- not as bad as yesterday though. I have a Rhumey appointment on the 22nd, I'll have to remember to tell him everything. At first I thought I pulled something, but the more I read, the more I think it's the Lupus.

Karol, that is so cool that you can use your home phone- what will they think of next?? Amazing.

Happy Holidays, everyone. It's hard to believe we are at the end of another year. I am very grateful for my new friends. :)

Pam
 

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Wow,,,, I really didn't know that technology is so advance now....Karol
I think we ca overcome this with proper medication and exercise

Anyways best of luck to you all!
 

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As far back as I can remember, I have had a fast pulse rate. The fastest I clocked it was 180 and had just finished a close to 20 mile bike ride. At that time, I was
working full time, riding my bike before work for 5 to 10 miles, riding my horse (english saddleseat) after work, teaching skiing on weekends in the winter.

When I was in school, my doctor decided he didn't like me having such a fast pulse and not supervised (?), so he wrote me out of PE. I was allowed to ski, do international folk dancing, bike, anything I wanted, but not school.

The rate has remained constant between 90 to 115, tho it does get faster if I have to use my inhaler a lot. Albuterol is a stimulant, and I can get shakes if I haven't had to use it for a long time.

If all testing shows nothing obvious, I would not worry about it then. Just prepare everyone that you will have a faster heart speed. I tell them to count quick...it is almost always fast.
Sally
 
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